Sorry girls, I haven't checked in for a few days, work has been busy!! It does make it much easier at least mentally knowing exactly what is wrong with me! Its much easier to wage a battle when you know who your enemy is!
Fancymom, sorry to hear about your moms dx of sarc. It took the docs almost 4 years to figure out what was wrong with me. When they finally did cat scans, they thought that I too, had cancer, lymphoma. The oncologist actually came in my hospital room with the hospital Chaplin!!!!  Than they said, well, lets do a biopsy just to make sure. Why they didn't do the biopsy first is a mystery.
I first presented with multiply miscarriages, most unlikely due to the sarc and probably due to blood clots even though my clotting tests are normal. I was recently treated for two pulmonary embolisms and 3 deep vein thrombosis, all types of blood clots and usually the pe's are lethal. While going through the fertility work-up and treatments, I started to have swelling and pain in my hands and feet, they said it was hormones. Than the constant fatigue, they said stress. Than I got pregnant for a 4th time with twins and while pregnant I got a raging case of uveitis (eye inflammation.) they called that a fluke. Lost the twins and blew up everywhere like a blow fish, than I was just depressed. Many, many, many doctors later and many wrong dx later, I finally know what I have, chronic progressive sarcoidosis.
For me, its painful almost everyday, my breathing is very limited, I have constant extreme fatigue, memory problems, the list is very long. At this very minute, I sit at my desk hooked up to a heart monitor. They are trying to figure out how much damage it has already done to my heart. I get remicade treatments for it every 4 weeks and things are improving a bit. I am glad your mom is in remission and hope she stays there!!
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Taking it one day at a time.....
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Re: Lisa Marie
