Generally, well, trying to be positive but haven't felt at all good in 5 weeks now. I did really good with my remicade when they did it two weeks apart, than the last treatment, I had to wait a whole month and a week before, I started to flare really bad. My next treatment is tomorrow so being hopeful. I decided to start a weeks worth of steroids this past Monday as I am really swollen and having a lot of difficulty breathing and the fatigue, ugh, you get the point.
My girlfriends wedding is this Saturday and I am in the bridal party so need to feel well. I am doing everything possible buy starting the dreaded steroids which I so hate taking, had a massage yesterday morning which sometimes helps with the swelling. My ankles are so swollen I am worried about getting the strap on the shoes I have to wear for the wedding hooked!
I am getting a manicure and pedicure tonight just to treat myself and I want to look as nice as possible for the wedding. The dress doesn't fit me well. It was designed for someone with a small waist and really big chest and well, I am the exact opposite of that! They added two boob cups to each side and took it in as much as possible but it still gaps really bad. I went to Victoria Secret and bought some $10 double sided tape, hopefully that will hold it down.
I am trying to be very Zen for lack of better word this week. Besides feeling really crappy, I am stressed about being sick for the wedding. Its going to be a really long day. At the brides house by 9:30am for hair and make-up. To the church by 3 for pictures and the reception goes until 1am. I just keep telling myself its ok that my dress doesn't fit well and that I feel very fat in it, that I will just do my best and it will be fun and don't worry about it etc.
I am so ready to feel better. The doc keeps telling me to give the remicade more time, 3-6 months. Tomorrow will be the start of my 3rd month so fingers crossed that the treatments start to kick in!
-------------------- Taking it one day at a time.....
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