Irritable Bowel Syndrome Message Boards | Re: Thanks, and how are you Michele?

Back when I still went to my neurologist at the children's hospital it was really great. He just asked if I had a problem with something (related to the condition I had) and if I said yes, then he simply referred me to the right doctor.

A few years ago about the same time the IBS got bad I had problems with muscle twitching but couldn't get hold of my GP and then I emailed my old neurologist (who is no longer in that exact field I think and by the way he should be retired now looking at his age but hey good docs are always welcome so) in desperation and guess what? Although he had no responsibilities or anything towards me anymore, since I hadn't been his patient for 9 years or so, he wrote a referral to the neurologist for me... I wish I had a regular doctor like that to coordinate stuff...

Hey, great to hear your D is gone! Now that's got to make you feel a bit better right?

I hope you get the proper diagnosis from the tests. And I hope you get some help. Neuropathy and nerve pain is nasty stuff.

I actually think in general people who have had the paralysis condition I have had but who are in wheelchairs because they didn't recover as well as I did, typically have the following priorities as to what they would want to fix if they could. (Of course provided they have some mobility, I think for tetraplegics the situation is of course different.)

1. Bladder/bowel/continence issues
2. Pain
3. Mobility

You mentioned having to be off the drug for at least 60 days before trying to get pregnant. Does this mean you're thinking about trying again?

I want to start trying soon too. In my dreams, i.e. if everything goes the way I want it to go, I get good help with the sphincter problem and bladder issues this spring and we can get married and start trying to get pregnant this summer. But I am worried it might take longer. The docs have a tendency to really take their time between tests, treatment, possible surgery et.c.

I'm only 27 (soon 28) so I'm in no real hurry in that way, but with the health problems I have had over the years I tend to think sooner is probably better than later... Plus it's economically good for me if I can have my first child while still being employed as a PhD student. Plus (and this is a big thing for me) my parents aren't that young (mom is 67 and dad is 78, soon 79) and dad has a pacemaker and has had some more heart problems this summer and needs all kinds of meds and he is more tired than he used to be, and I just feel it's so important to me that my parents get to meet their grandchildren. So for that reason too I think sooner is better than later...

I hope things finally work out for you now. And I hope things work out for me too.

Big hugs,

Ulrika, IBS-D

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