Irritable Bowel Syndrome Message Boards | Re: Thanks, and how are you Michele?

That's exactly what I gripe about as well!!! If these docs would look at us as a whole person instead of whatever body part or system they specialize in, we would be far better off! I too, feel like managing my medical care is a full time job in itself! It shouldn't have to be like this but it seems that this is a problem for many of the medical systems!

I am doing ok. I made the decision to stop the mtx injections. I only agreed to do them because I believed that they would help my hands and feet. They aren't. My hair is so thin from it falling out and the crap is just toxic. It makes me sick and I just don't believe the benefits out weight the risks.

I also have to be off this drug for a MINIMUM of 60 days before we can think about trying to get pregnant. Its just that toxic. I have to have blood work done every three weeks for it as well. I have already stopped my previcid and placquenil.

I have an EMG test tomorrow to rule out the neuropathy. I will see the neurologist the 13th of February and the rheumy the 14th. If they can't tell me decisively whats wrong, I am going to ask to be referred to a pain clinic for spinal injections to block the nerves to my hands and feet. I had this done a few years ago when I developed a rare form of neuropathy called reflex sympathetic dystrophy. It can be a bit dangerous but since they can't figure anything else out......

My D has gone away so I am thinking side effect of either the previcid or placquenil. Or I do have some sort of weird autonomic neuropathy and the Lycria is helping with my gut somehow. Who knows anymore!

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Taking it one day at a time.....

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