I was surprised that your doctor brushed off the plaquenil so easily. My rheumatologist was not sure if I have lupus, rheumatoid arthritis or psoriatic arthritis. He said it can take a long time to actually sort these things out since the symptoms overlap so much, but he said that plaquenil is an excellent drug for any of these conditions and is almost always the first line of defense when treating auto immune disease because it tends to have low side effects. Are you thinking of getting a second opinion? I wouldn't blame you if you wanted another.
It can take a long time even for an experienced specialist to figure out which disease is actually causing the problems, so I wonder why he's so closed about the lupus diagnosis? You do have UV sensitivity right? I don't know what to tell you Michele, but if you feel like you have lost confidence in this doctor, you should probably find another one. It also irks me when doctors want to pass off real pain by just telling us it's depression. I've been there before too. GRRRRR!