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Re: Amy
      07/04/05 01:09 PM
jen1013

Reged: 05/06/05
Posts: 1322
Loc: the wabe

Quote:

I was having daily D, had no idea what it meant to feel "well". For me well is not TOO many pains and cramps and not too bad D (going once or twice instead of heaps more).




For me, well is not having D! I work 10-13 hours per day PLUS a one-hour commute (one-way), so hell to me is a D attack. I do manage to keep the D barely under control with a lot of Imodium and prescription anti-spasmodics. There are some days when I have D no matter what, but usually it's only bad in the morning. I always have pain and cramps. There just isn't any way around that. The anti-spasmodics help a little bit, so does Tylenol, but it never goes away. I am not really that stressed, so don't think that's a contributing factor.

Quote:

Are you still eating anything other than wheat which MIGHT be triggering a reaction? Have you tried the what to eat when you can't eat anything diet?




I follow Heather's diet exactly -- I have been doing this a year now so I know all the rules and read labels like crazy. I keep my fat under 25% -- most days it's more like 10-15%. Because I have GERD, I also rarely eat "iffier" things like tomatoes, onions, garlic, etc. I eat practically no IF. I did cut out soy & peanut butter for six months, but it made absolutely no difference so I added it back in.

I was on the breaking the cycle diet for a month. I went off it not because I was feeling better but because I ended up so malnourished (although, for awhile there I did have killer cheekbones from all the weight I lost). I felt better once I started adding in more food.

Thanks for the list of GF staples in your other post -- I'll keep that handy once I do go GF.

Also, that's interesting that you mentioned the doctor might not think it important enough to say anything about the high antibodies. I had a CAT scan a week after my colonoscopy, and the barium I drank gave me the worst D I have ever had. Well, the D was bloody -- so of course I call the GI, freaking out. When the nurse finally called back (several hours later), she said, "Oh, yeah, that's due to the hemorrhoids." I was like, "What hemorrhoids???" She said, "Oh, the colonoscopy showed you had some small hemorrhoids." It drives me crazy that doctors just won't mention stuff like that. I know that it's not life-and-death stuff, but it's still information the patient should have!

OK, had a bit of a crazy fit there. Sorry.

I hope you are still feeling good GF! I am keeping my fingers crossed for you -- you've been sick long enough, you really deserve to stabilize. Also hope you're getting over the flu.


--------------------
jen

"It's one of the most serious things that can possibly happen to one in a battle -- to get one's head cut off." -- LC

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Entire thread
* AHHH! STRESS!!!!
doubletrouble
06/28/05 08:58 PM
* Amy
Sara-Sage
07/04/05 12:26 PM
* Oh no!
Augie
06/29/05 12:54 PM
* Beth
jen1013
06/30/05 07:26 PM
* I had high antibodies...
Augie
06/30/05 08:23 PM
* So what kind of blood work
jen1013
07/02/05 10:30 AM
* Jen, I'm not ignoring you
Augie
07/04/05 01:36 PM
* Jen..
doubletrouble
07/02/05 04:48 PM
* Jen1013...
doubletrouble
06/30/05 07:32 PM
* that's great Amy
Augie
06/30/05 08:27 PM
* Amy
jen1013
06/30/05 08:19 PM
* Re: Amy
doubletrouble
06/30/05 09:15 PM
* Re: Amy
jen1013
07/02/05 05:12 PM
* Linz....
doubletrouble
07/02/05 07:24 PM
* Re: Linz....
Linz
07/03/05 03:05 AM
* Linz, is there any question you CAN'T answer??? Thanks! -nt-
jen1013
07/04/05 11:49 AM
* Aw, you're so sweet!
Linz
07/04/05 12:21 PM
* Thanks Linz. You're so AWESOME :) nt.
doubletrouble
07/03/05 05:17 PM
* Re: Amy
doubletrouble
07/02/05 07:22 PM
* Re: Amy
jen1013
07/04/05 01:09 PM
* Beth.
doubletrouble
06/30/05 02:00 AM
* Re: AHHH! STRESS!!!!
BL
06/29/05 08:54 AM
* BL.....
doubletrouble
06/30/05 02:05 AM
* Amy
BL
06/30/05 07:41 AM
* Re: AHHH! STRESS!!!!
epa_ginger
06/29/05 07:35 AM
* Epa-Ginger
doubletrouble
06/30/05 02:40 AM
* Re: AHHH! STRESS!!!!
Yoda (formerly Hans)
06/29/05 07:12 AM
* Alicia...
doubletrouble
06/30/05 02:42 AM
* Re: AHHH! STRESS!!!!
Sara-Sage
06/29/05 06:17 AM
* Tina...
doubletrouble
06/30/05 02:44 AM
* Re: AHHH! STRESS!!!!
Cara4503
06/29/05 05:45 AM
* Cara...
doubletrouble
06/30/05 02:45 AM
* Re: Surgery
michele
06/30/05 07:22 AM
* I'm so sorry...
ecmmbm
06/29/05 05:06 AM
* Michelle....
doubletrouble
06/30/05 02:48 AM
* Re: AHHH! STRESS!!!!
Sailing Away
06/28/05 11:16 PM
* Michelle (Sailing Away)..
doubletrouble
06/30/05 02:50 AM

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