There many many research doctors, organizations and even IBS suffers who are out there working extremely hard for funding for more IBS research, for public awreness, for accurate IBS information from reliable sources, for legtimizing and better able to diagnose the condition, looking for biomarkers, for helping others understnd it better even though it is super complex, researching every part of the body and how it functions and making a lot of progress. A lot of the progress and helpful information gets lost sometimes between the researchers and the regular md's and then further down to patients. Then people coming back to help try to share that information and help explain some of it.
Don't know why all that is a bad thing.
Knowledge about a health condition gives you some power and control over it.