My mother has IBS-D also, but not everyday. Just sometimes. And my brothers also have "stomach problems". So, there is some family background as well.
Plus, I am a stress monster. Everything is hightened in stress level for me and I do not handle it well. Dealing with the pain and unanswered questions to my problem is the number one stress in my life. Ironic that the cause of stress creates more symptoms.
The medicines for delayed gastric emptying are horrid and didn't really help. My case is not too severe, thank goodness.
I just feel sad that for so many years I didn't eat the foods I loved like Pizza, french fries, anything chocolate or lasagna and yummy fattening italian foods. And now, once the ED is gone and I would gladly eat them, I can't because of this horrible IBS. I feel like I am being punished somehow. I made decisions not to eat the food, and now I can't eat. So, I will have spent almost my whole life having never been at peace with food. Not to mention the social gatherings that center around food. First I avoided them because I didn't want to eat, and now they usually never offer anything safe and gluten free for me.
I'm rambling. Thanks for your honest reply. I don't feel so alone now. And if you can help keep me reminded that there is life after an ED even though we have all the ramifications that resulted from it, I would be grateful.
BTW, can you tolerate a Soluble Fiber Supplement, like citrucel, benefiber, or acacia even though you have an extra long colon? I know Michelle has an extra long colon and she is unable to take any SFS because it just sits in her and clogs her up more. Can you take one to help the Constipation?
Oh, one more question. You say you haven't had the ED for ten years. Is your pain and symptoms any less severe now than they were 10 years ago? I had an Eating disorder for over twice as long as yours. A lot more time for permanent damage, I fear. And doctors just are unable to tell me what the permanent effects are from long term eating disorders one the person is no longer Eating Disordered. Please, just be honest and just tell me what you think I want to hear!
thanks for sharing your story and thoughts.
Lots of love
-------------------- ~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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