Wow--that is interesting. Does kind of explain why the elimination program was so frustrating. Too bad this is all so complex and tricky.
I was on a rotation diet for a while at one point, and that was helpful. It might kind of fit in with what you're saying about thresholds. Foods are grouped into 4 categories (as I recall, they are food families with related chemical structure). You eat from group 1 on day 1, then group 2 on day 2, etc. You just continue to rotate the food families. The idea is that you don't overload your system with any one thing. This is often advised for people with a lot of food allergies. It seemed helpful, but it was very complex to figure out what to eat all the time. At the time I was on it, I traveled a lot for business, and I just couldn't keep up with the diet.
I know what you mean about practically getting malnutrition. My digestive problems have, I think, created a sort of eating disorder. There have been times when I just couldn't figure out what to eat, so I didn't eat at all. Now I try to eat as healthfully as possible, avoiding foods I feel may be triggers, and just accepting that I will probably have D no matter what.
I too feel like life sometimes revolves around what to eat, where the nearest bathroom is, and how comfortable or uncomfortable I am. I am trying to go ahead with a "normal" life as much as possible; I don't want to miss out on all the good stuff just because my gut is so problematic! But it is hard to always have this overriding feeling of not being well, not being in control of my physical being, and not knowing when I'll have to give up a planned activity or responsibility because I'm too sick.
I appreciate your insights and encouragement.
Thanks, Judith
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