Grrrrr @ the article in this months newsletter
#28167 - 11/21/03 07:50 AM
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POADB
Reged: 06/01/03
Posts: 38
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"Doctors Unmoved by Bowel Misery
The distress and discomfort of irritable bowel syndrome (IBS) earns little sympathy from many doctors, according to a UK survey. The majority of US doctors interviewed believed that IBS, while unpleasant, was not a serious medical condition, while four out of five admitted that they did not follow established treatment guidelines.
Nearly a third of the doctors said that IBS was mainly a psychological problems, instead of a genuine physical complaint. Support groups say that some doctors still have little time for patients complaining of IBS symptoms."
This really, REALLY, annoyed me. (annoyed being the polite word for P!*sEd OFF)
I find it frustrating how doctors can just neglect such a distressing disorder.
This is perhaps why IBS is considered uncommon. Because those lucky enough not to have it, brush it under the carpet.
I'm from the UK, and I can tell you, our docs neglect this issue just as much as the US doctors mentioned in the quote/article.
I had to learn all about IBS on my own. Not even my family (meaning my mother) would help me. She stuck with the doctors and said - it's all in my head. BULLS**T.
You know what I reckon? That the doctors diagnosing IBS dont even know themselves.... They're following textbooks. Giving out bad advice.
My doctor said to me - There is no cure. Somedays you'll have bad days, some days you'll have good. Here's some spasmanol for the bad days. And try to eat more Fibrery foods, like Brown Bread, Bran etc...
Now - I'd love to go and sit in the room with him and give him a lesson in IBS and what it is all about. I'd even tell my doctor to recommend this website to his patients.
So - enough of the rambling.
I was wondering, does anybody have any ideas of how we can make others (mainly bad advising doctors) more aware of IBS and the such nessessary precautions to take?
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I had trouble getting diagnosed at first, because of this. One doctor actually told me that he saw nothing strange about me always having diarrhoea and getting so dehydrated that I had to have rehydration drinks ALL the time!! Grrrr.
But then I saw a doctor who is really cool and has been great about referring me to the best people. He's also been really interested in learning about IBS from me. I've even had students and nurses sit in on appointments so that they can learn too!
They're hard to find, but some doctors are ok. But I ahve to admit, I can't stand the profession in general.
Linz
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I take the attitude is I can't move a mountain, but if I can help one person, that person will help another, and another .... I've been shocked when I have said I have IBS and 90% of the time, people know what it is and someone else who has it. I talk up this website.
When I was in the hospital for 6 weeks before my daughter was born, I talked to nurses, Docs and gave them the address for this website. I lent out my IBS books, and although it's so frustrating, try to inform people one person at a time. Eventually we'll get there. The alternative is to scream at the Doctors. That will make us feel better but won't help others. Make sense?
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Formerly HanSolo. IBS, OCD, Bipolar, PTSD times 3.
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That would be real exposure and would reach a lot of people. If we all wrote to Oprah asking her to have Heather as a guest, after hundreds of letters, maybe she'd do it! Not that Doctors watch Oprah ....
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Formerly HanSolo. IBS, OCD, Bipolar, PTSD times 3.
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My doc has been awesome. He sent me to a specialist -- ordered every test that he could ... and I live in a small town. So there are some gems out there. I had a really bad doctor before -- so don't take him for granted at all. This guy is the best! 
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