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A nice thing happened today.
      #124890 - 11/23/04 11:26 AM
ecmmbm

Reged: 02/23/03
Posts: 1622
Loc: North Carolina

I have 3 kids, if you didn't know - 6, 4, and 2. I homeschool Luke because the school system was absolutely horrid especially given that he is a different kind of learner - he has Asperger's which bascially means he's a lot like you'd think ADHD and also very bright but has delays in language and socialization and needs things to follow a predictable routine, can't take chaotic unexpected situations or a lot of conflict, he's very sensitive too. It's actually considered on the high funtioning end of the austism spectrum. ANYWAY... why I went into all that I don't know. But I took the kids to Chic Fil A for lunch and to play today. It's always an adventure. Went soemthing like this:

First, all to the potty. NO, not in the boys, in the girls. I know you're a boy but I'm a girl. Go potty. Wash hands. Close the door, we're not done yet - wait for us all. To the playroom - shoes off, socks stay on. Shoes in the cubbies. Come back, shoes in the cubbies. Good. No, socks stay on. On your feet. Come down and put your socks back on. Good. Are you going to take your socks off? (No) Good. I go get food. Aaron (4) decides to come help me. I turn around and see that he's climbed on top the thing to reach the napkins and straws. I get him down. He carries them to the table for me. He has about 10 million napkins! We'll probably need them. We all get seated. Aaron gets his water. Tries to put the straw in by himself. He spills the entire water everywhere. I don't get mad. I send him over to tell someone to bring a mop, so he does. We clean the table - Aaron's chair is still wet so he sits in the booth with Luke and Sarah, they look cute all 3 sitting there together. Luke gets plain chicken, Sarah gets plain bread, Aaron gets a sandwich. Everybody gets a banana brought from home. We thank God for the food. Oh no it's hot! Wait for it to cool. Eat your banana first. No that's Sarah's water, this is yours. They eat most of it. Yes you can go play. Luke you cannot swing from the bar, I know it's easy but it's not safe. Sarah (2), come back, in the playroom or in your seat. Aaron do not hang on the door. Boys, you can both be the Hare, don't fight over who is Tortoise and who is the Hare. Boys come down quick Sarah has to go potty again. No not in the boys, in the girls....

I'm replaying all that because it's funny, but also because there was this family sitting on the other side of the wall from us that I noticed but didn't pay much attention to. Apparently THEY were paying attention to US. They were there when we got there. As they were leaving (after all the above happened and who knows what else) the mother came over to me. She said the funniest thing, after all our chaos she says, "I just want to tell you that you're doing a great job, I remember when mine were that age". First off, I have to pick my jaw up off the floor, look around wondering who she has me mixed up with from that morning!! My kids always seem so out of control compared to others with 1 or 2 to keep up with. Then she says, "Keep enjoying it, my oldest is 17 now and he still talks to me about everything". I'm wondering if she is a homeschool mom and can tell I am too? I don't know, but it was neat to hear, especially when stuff was so crazy. I told her that was sure what I was hoping for but at this point I was just trying to keep them all alive that long!!! Anyway, that was pretty out of nowhere but told her it made my day, so thanks.

I don't know why I'm sharing this - it was a big deal to me, I usually feel like when we go places people are mumbling to themselves that I "sure have my hands full" and count down the minutes till we LEAVE!

Hope everyone has a great thanksgiving - I'm thankful for our "crazy life", as the country song says, "Just another day in paradise" and I'm glad for it.



--------------------
Take care,
Michelle
...the greatest of these is LOVE. (I Cor 13)


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Michelle new
      #124903 - 11/23/04 11:55 AM
Sheri01

Reged: 04/19/04
Posts: 1731
Loc: New Jersey

That is so great ! Is is always nice when someone(especially a stranger) notices something positive and goes the extra step to COMPLIMENT the person. That woman is so nice! And you deserved it, you must be some mom to have someone come up and say that to you!
My brother has Aspergers, too. He is 16 years old, but only recently diagnosed, because like you said, it is high functioning, and alot of times teachers/parents just think their kid has behavioral problems. My bro was always just pushed away as being ADHD, before it was 'the big craze" to diagnose all kids as such.
I know before you mentioned before that one of your kids has to be on a special diet, is it Luke? Is there away to treat Aspergers by diet? I think I ran across something in a nutrition book I was skimming through last night... sorry if I am rambling.
I am afraid for my brother at times, because since he is high-functioning and VERY intelligient he has a chance at "the normal lfe", but I am afraid he will not get it, he is getting increasingly obese due to his laziness and lack of coordination, and more importantly, the way he eats! My parents (mom especially) lets him do WHATEVER he wants. My parents dont seem too bothered and don't do much about it, they even go as far as to buy him the junk food. It is like they use it as an excuse to give up on parenting, even though he probably needs the discipline or guidance more than ever. My mom also doesn't make him go to his school (a special one for kids with minor disabilities) we are lucky if he goes half day three dyas a week. Eve nhaving friends there is not enough to keep him going.
it is alot on a twenty-something year old (me) to have all of these worries! It is also hard because I don't live with them, and I spend alot of time at work and school, so I can not really be a good influence on him. Has anything in particular helped you with your son, maybe I could give my mom advice? Problem is that she has a lot of *problems* and can barely help herself. I still do not even know much about the syndrome, but I do care about my bro a whole lot. Any good books that you have found on the subject? A guy at school told me about a fiction book written in the eyes of an Asperger, but I have not gotten ahold of it yet.

Argh, sorry for rambling on and on, didn't really mean to, but it is so rare I even hear that some one has heard of Aspergers, even though it is getting more wellknown.
Seems like my family is on the cutting edge of all disorders, right before they become the "big national concern'.

--------------------
-Sheri

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Re: A nice thing happened today new
      #124908 - 11/23/04 12:04 PM
BL

Reged: 06/01/03
Posts: 3522


Michelle,

Gosh, how wonderful for someone to make a positive comment on your parenting skills! I know that meant a lot to you. You are right that mothers usually only get negative feedback from others.

I still remember the comments I used to get from strangers when I took my 2 very rambunctous boys (only 13 months apart) in a store. You know those bars that separate the cash register lines? Well, my boys were usually hanging and swinging on them like monkeys---and no matter how much disciplining or bribing I did, it didn't make any difference.

This has been years ago, but I still remember this older woman sticking her nose up in the air and saying to me, "I'd never let mine act like that!" And it was all I could do not to burst into tears. Didn't she realize I was at my wit's end and had tried everything to get them to stand in line politely? People can be so cruel!!!

Thanks for the reminder that we all need to be encouraging and uplifting to moms of little ones! In 19 years of parenting, I remember getting one positive comment from a friend who said, "You know you are a really good Mother." I can't remember ever hearing anyone else say that to me, which is kind of sad. I don't think I was that bad of a mom!!!! People just don't think to praise Mothers---they take them so for granted.

Now when I'm shopping and I see a mom with little ones (especially 2 little boys close in age like mine are) my heart goes pitter patter. When your "children" are 18 and 19 years old, seeing them interact is like looking in a mirror. Your life flashes in front of your eyes. You don't remember how exhausted you were. You just remember the precious times you had together! It just seems like yesterday that I was in that stage of my life. How I got to be so OLD and my boys all grown up, I don't know!

These moments with your children are so precious. Pretty soon, they will be in junior high and you will embarrass them with every little thing you do. Enjoy every single moment!!!









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Michelle- SUPER MOM! new
      #124916 - 11/23/04 12:38 PM
cailin

Reged: 08/12/04
Posts: 3563
Loc: Dublin, Ireland

Michelle-
GOod work supermom- its great when strangers recognise your efforts. I often enjoy watching the interaction in young families in public places. I think you can always tell so much by the way Mom looks at the kids and the way the kids look at Mom...a look says it all.

So congratulations!

Sinead

--------------------
S.

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Sheri01- Name of book new
      #124917 - 11/23/04 12:40 PM
cailin

Reged: 08/12/04
Posts: 3563
Loc: Dublin, Ireland

Hi Sheri
The name of the book written through the eyes of a child with Aspergers is "The Curious Incident of the Dog in the Night Time" by Mark Haddon. Its an excellent read.

Sinead

--------------------
S.

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Re: Sheri01- Name of book new
      #124920 - 11/23/04 12:50 PM
Sheri01

Reged: 04/19/04
Posts: 1731
Loc: New Jersey

Yeah that is the one! Now I am anxious to go get it ... have to get my papers written for school first, though...

Thanx

--------------------
-Sheri

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more asbergers stories... new
      #124923 - 11/23/04 12:52 PM
khyricat

Reged: 08/05/04
Posts: 3612
Loc: Michigan

interesting to hear... I hope home schooling works out for you. I know 2 kids with asbergers- one has just been diagnosed at age 2 (I think he's almost 3 now- time flies), and the other was diagnosed at 13 and is now 16... he's doing amazingly, but is very skinny and not very social as to be expected.. thankfully his 2 younger brothers are great with him and do things to help him feel included by groups of kids... and he has a lot of help from a school system that has worked with his mother on whats best for him!

Amie

--------------------
Dietetics Student (anticipating RD exam in Aug 2010)
IBS - A
Dairy Allergic
Fructose and MSG intollerant


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Cute little kid story... new
      #124933 - 11/23/04 01:07 PM
Sheri01

Reged: 04/19/04
Posts: 1731
Loc: New Jersey

Sorry I just remembered this one!
This weekend I was at Trader Joes, and there was alittle kid in the kidseat of the shopping cart in line behind me with his mom. Every time the clerk scanned on of my products he went "beep!" at the same time sounding the same way. It was soooooo cute! It took me alittle to catch on, than I turned and smiled at him and his mom. It even warmed my BFs heart, and he is a self proclaimed kid hater.

--------------------
-Sheri

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Awww! new
      #124940 - 11/23/04 01:16 PM
Linz

Reged: 09/01/03
Posts: 8242
Loc: England

You sound like a great mom. So many parents seem to just scream at their kids when they have accidents like spill their drink - they didn't MEAN to! Good on you for not getting mad.

And you're a great mum for home-schooling Luke. That is so the best thing for so many kids that don't get it - your kids are lucky to have such a wonderful mother!

It's funny reading all these aspbergers stories as my MIL and I are convinced the friend that lives with us (me and Si, that is) has Aspbergers. He's not social and has serious difficulties understanding the emotions of others, but very bright, etc.

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Ooo! new
      #124943 - 11/23/04 01:18 PM
Linz

Reged: 09/01/03
Posts: 8242
Loc: England

My MIL recommended I read that, she said it's fascinating.

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Re: A nice thing happened today. new
      #124978 - 11/23/04 02:33 PM
heather7476

Reged: 08/09/04
Posts: 2996
Loc: South East Michigan

SUPER MOM!!!!! That is great!!! It feels so good to reconized for doing a good job!!!! Way to go!!!! I am a stay at home mom and I know alot of people think I have the easy life!!! So it is wonderfull that someone reconized you for what a wonderfull job your doing!!!!

CONGRATS!!!!

--------------------
Heather7476


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Re: A nice thing happened today. new
      #124993 - 11/23/04 03:32 PM
Snow for Sarala

Reged: 03/12/03
Posts: 5430
Loc: West Coast, USA

Michelle,

In so many ways I envy you....in a good way!

I was a kindergarten teacher. 21 five year olds with NO ed. classes or teaching experience under my belt. But it ewas the BEST year of my life...

The chaos of kids is WONDERFUL (most of the time) It really DOES sopund like you do a FABULOUS job with your kids!!!

I just want to say that l;ady is right. and so are you...that song fits PERFECTLY!

You're VERY special Michelle...and your kids are too!

Just my 2 cents

Love ya...happy you're happy!

Love,

Ruchie

--------------------
Formerly known as Ruchie

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Re: A nice thing happened today. new
      #125028 - 11/23/04 05:04 PM
chinagrl

Reged: 12/18/03
Posts: 2439


Hi! I have a question- how did you know to get your son tested for Aspergers? I've occasionally wondered if this is something I should get tested for and I would like more info (if you don't mind giving it to me).

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On Asperger's new
      #125040 - 11/23/04 05:38 PM
ecmmbm

Reged: 02/23/03
Posts: 1622
Loc: North Carolina

Luke was actually diagnosed with mild to moderate autism at age 3. He did not talk yet except to occasionally repeat what he'd see on TV or in a video (that he'd ask to watch the same one over and over). He also had many of the other signs of autism (too much to go into here). He got the diagnosis of Asperger's when he was 5 because by that point his verbal skills had exploded, and typically Asperger's is more a diagnosis who is verbal (many autistic children are not or barely are) and who can even sound like "little professors" because they have complex vocabularies but the pragmatics can be "off". They typical have difficulty with sensory issues, for example they can either crave movement and touch like my son, or avoid/fear it, can be highly sensitive to too much sound and/or light, crowds can be upsetting, reading social cues is near impossible without making it obvious to them, but most have above average intelligence and have very strong emotions and are very loving to those they know well and who can understand their unique way of showing it. This is just off the top of my head. Luke is very very bright, has a photographic memory and a unique way of looking at everything around him, but he can also be quite precocious and frustrating to those who don't understand.

These diagnoses came from a pediatric developmental neurologist, as well as a team from the school system of an educational psychologist and others. There are organizations like TEACCH in NC that specialize in screening and diagnosing people with autsim spectrum disorders.

Here are some good links:

http://www.udel.edu/bkirby/asperger/

http://www.wired.com/wired/archive/9.12/aspergers_pr.html

http://www.parents.com/articles/health/2156.jsp



--------------------
Take care,
Michelle
...the greatest of these is LOVE. (I Cor 13)


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Re: A nice thing happened today. new
      #125041 - 11/23/04 05:42 PM
doubletrouble

Reged: 11/14/04
Posts: 1530
Loc: Canberra, Australia

Hi Michelle! It's great when someone makes your day. I know you're doing a fantastic job..... and I certainly know what chaos it is to go ANYWHERE! I too usually receive those looks where you know your hair is sticking out everywhere and you look like a big frazzled mess who can't wait to get back home! It takes me about 2 hours to leave the house and everywhere I go I feel like I'm the noisiest family there! So congratulations and I hope you get many more comments like it

--------------------
Amy


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Yes, he's on a special diet new
      #125043 - 11/23/04 05:52 PM
ecmmbm

Reged: 02/23/03
Posts: 1622
Loc: North Carolina

I believe that has been a HUGE part of his progress! First we did the Feingold protocol (and still do) www.feingold.org It really helps with the hyperactivity, stimming, lack of focus, irritability, etc. It has been proven to help many kids/people with various disorders including ADHD, etc. But he still had diarrhea all the time and pain/bloating - I figure I passed on some awful thing to him digestively, who knows. The Drs didn't have a clue what to do for him, he tested negative for any parasites or infections. I heard about the Specific Carbohydrate Diet and he has been on that since January. I hesitate to say too much about that here because it contradicts a lot of what Heather's diet says to do, but Luke and I are not of the same condition so what works for one does not work for all. It took care of his D and pain within a week and he also improved neurologically/emotionall too because he was finally absorbin nutrients from his food.

Sadly, I hear of a lot of Asperger's folks being obese because they lack self control or the ability to make wise choices, and so if no one monitors that for them and guides them into how to do that as they grow up, they just live off junk food. Sad! Luke is tall and skinny as a rail right now but then he got my genes so he'll probably be all knees and elbows as a teenager.



--------------------
Take care,
Michelle
...the greatest of these is LOVE. (I Cor 13)


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Re: On Asperger's new
      #125050 - 11/23/04 06:41 PM
chinagrl

Reged: 12/18/03
Posts: 2439


Thanks Michelle- I appreciate the info. My big problems are with social interactions and I lack the ability to speak like a normal person...

Unrelated to me, it sounds like you're a great mom! Your family is lucky to have you.

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Re: Yes, he's on a special diet new
      #125065 - 11/23/04 08:27 PM
Sheri01

Reged: 04/19/04
Posts: 1731
Loc: New Jersey

Yup, that is my brother, living off of junk food! My whole family is thin, even if we don't eat the healthiest, no one has gotten obese, excpet for him.
Thanks for the advice, I think I might try to have a *talk* with my mom over the holidays, she has to pull herself together for his sake.
Was the bowel problems from Aspergers, or you are not sure I guess? (Sorry to ask yet another question)
Cause I know that my brother used to get really sick and run in the bathroom before school, and would miss school becuse of it. My mom believes him, but I thought he was making it up. But, after my experiences with IBS, I am starting to think differently, but then again, having as bad a diet as he does could cause D!
Thank you so much for the info, I do not even know if my mother had him properly diagnosed. I will have to look into all of this further. He needs to take action to get his life back on track, not just feed off of excuses to do nothing.
Thanks again!

--------------------
-Sheri

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jenny new
      #125067 - 11/23/04 08:36 PM
Sheri01

Reged: 04/19/04
Posts: 1731
Loc: New Jersey

My brother has stiffness of limbs, speech problems (getting caught in sentences, stuttering, saying the same thing over, and over, and over). He also talks kinda funny, he has a normal voice, I heaer it sometimes, but alot of times he talks loud and kinda high pitched and screechy. I think it is more than puberty, he has always talked like that. He pronounces words kind of strangely, too. Like he accents and pronounces my name SHEER-ee, when everyone else around him has always said it sher-EE. I always used to yell at him, if only I knew he couldn't help it!
he fidgets CONSTANTLY and dazes out. Is very intelligent but cannot communicate his thoughts properly, through talking and even writing, and his handwriting is atrocious. I have heard that Aspergers get frustrated because they have all of these brilliant thoughts and ideas but cannot get them down on paper, or out of there mouth.
He also makes odd noises out of nowhere, but that is getting better as he gets older. The stuttering has improved too. It used to be exhausting listening to him tell you one story. He also has social problems, his best bud calls him like five times a day, but my brother has never called him once.
he always has to have his way, and can excel at any video game, but not even toss a ball.
how much of this has to do with being a product of his TV watching, video game playing, ritalin prescribed era and being the 'baby' to my mom, I have no idea.
Hope I kinda helped?

--------------------
-Sheri

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Re: On Asperger's new
      #125080 - 11/23/04 11:54 PM
Linz

Reged: 09/01/03
Posts: 8242
Loc: England

I know it's not "official", but my housemate (whom I'm convinced has Aspberger's) has problems reading social cues (thanx Michele, I'd forgotten the phrase!). He doesn't know if he's upset one of us unless it's pointed out to him. And he didn't use to say thank you (eg. when he'd stayed with someone) and hello/goodbye, but now he's learnt to do this. Plus, he's very bright, but left to his own devices would spend all his time on his own in his room. Oh, and he's fanatically tidy about his own space, but doesn't understand about tidying up outside his room!

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Re: On Asperger's new
      #125089 - 11/24/04 01:28 AM
PsiMan

Reged: 11/11/04
Posts: 9
Loc: The Royal County of Berkshire, UK

Right I'll remember not to tell him to read this forum then...

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