waitin' for a miracle: help for my treatment-resistant IBS *DELETED*
#70327 - 05/14/04 06:36 AM
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Post deleted by rick401
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Hi Chris,
I am so sorry to hear that you are having such a hard time, it sounds like you have been through so much already and still no signs of relief! I really don't know of any other tests that you should have. There are a lot of people on here that I am sure will be able to help you. I just wanted to say hi and let you know i was thinking about you. Don't give up, there is a light at the end of the tunnel...we just have to find it!
chrisine
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Wow Chris...it looks like you've done everything right so far....BUT you definately need a colonoscopy!!
I think that is a really important test and you should demand it!!
I really can't think of anything else to suggest to you...it sounds like you've been doing it right.....maybe someone else will have a suggestion??
Hope you feel better soon
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Hi Chris,
Wow, you've certainly been through the mill, haventcha?! I don't know if there's much I can suggest, but I'm gonna try.
You didn't say HOW you're fixing your insolubles. When you have fruit and veggies, how do you prepare them? I'm sure you know how by now, but I'm just wondering if maybe you might benefit from something like a juicer? I have problems with "roughage" and have been considering investing in a juicer so I can turn carrots and celery into something more digestable. Lately I've been craving grapes! OMG! (Put it out of your mind, Bev, just FORGET it!)
Also, Chris, have you told your doctor about your problems RECENTLY? I mean, maybe he felt you didn't need a colonoscopy back THEN, but if he knew what you're going through NOW, perhaps he'd change his mind. I'd push for the colonoscopy, I really would.
You mentioned that you've already tried an antidepressant, but the different kinds do vary, especially the side effects. I used to be on Wellbutrin, but now I'm gonna try Paroxetine (see the article in Heather's new Newsletter and in the Research Board). I called my doc yesterday, and he gave me a prescription for it. It's supposed to relieve IBS symptoms!
I hate that bloating and gas -- especially the gas, because it's impossible to be around people!  But all we can do is try different things and just "keep on keepin' on....."
Good luck, Chris! (And it's good to see you back here.)
Bev
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<img src="http://home.comcast.net/~letsrow/smily3481.gif">Bevvy
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I agree, you need to get the colonoscopy. Esp. since you are still so sick. Something else could be going on...crohns, ulcerative colitis, etc.
I feel for ya! Take care.
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--Julie
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Oh, Chris, I'm so sorry to hear about your intractable IBS. The only two suggestions I can think of are to double check Heather's seven deadly sneaky IBS sins from the past newsletters. And you didn't mention anti-diarrheals such as Imodium, etc.
Good luck, my heart goes out to you. No one should have to suffer like that. Or like our AllieGator in her recent post. For the third time today I am forced to say that sometime life is just NOT FAIR!!
Keep us posted okay?!
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Laura
Keep it simple!
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Paroxetine
#70552 - 05/14/04 06:14 PM
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Vicam
Reged: 02/24/04
Posts: 1955
Loc: Ontario, Canada
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I just wanted to second what Bev said about trying the Paroxetine, I was on it for about a year and a half and so far it was the only time my stomach felt better. Sadly it made me gain a ton of weight so for health reasons I had to go off it.
Just a tip for anyone starting it, watch how much you eat! It's so easy to gain crazy amounts of weight on that drug I found!
Kelly
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Oh No, Kelly!
#70557 - 05/14/04 06:44 PM
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Bevvy
Reged: 11/04/03
Posts: 5918
Loc: Northwest Washington State
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Oh please tell me this isn't so. PLEASE! I can't gain more weight. My cholesterol is already too high, my blood pressure is too high (well, with the drugs I'm taking, it's finally way down), but I'm trying to LOSE, not GAIN.
My doc told me that the side effect to this drug is increased appetite. I considered not taking it because of that, but he said the risk is VERY minimal. Now maybe he was being too optomistic.
You gained weight because your appetite increased? Oh please say it isn't so. I had great hopes for this drug....
Let me have it between the eyes. I can take it.
Where are those worms?
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<img src="http://home.comcast.net/~letsrow/smily3481.gif">Bevvy
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I'm sorry Bev  I personally did have a really hard time with the weight gain, but then, I have very little willpower (or at least I didn't then).
I personally think it was a three-fold problem:
1. Increased appetite
2. It calmed my stomach so much that I was able to eat a lot of the "bad" food I hadn't been eating like fast food, chocolate, chips etc.
3. It often slows the body's metabolism of carbs (or so I've heard) and I was eating a lot of carbs!
So yes, I did put on a lot of weight, almost 40 lbs which was just really shocking for me! I can't say it was entirely the drug, but it definately contributed to it. I'm sure there are people who don't gain that much weight on it, I think you'd just have to be really careful.
It's a love/hate relationship for me with that drug, the weight gain was terrible, and I had bad sexual side effects from it (lost my sex drive completely) but I must say it really helped my tummy.
One more thing, I personally found it incredibly hard to get off of, and my doctor agreed with me that it's one of the worst for withdrawal symptoms. You may want to check out this website: www.paxilprogress.org just to read a bit about it and give you some information before you try it.
Sorry if this is disappointing for you, please don't not try it just because of what I said, it might work very well for you!
Kelly
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Post deleted by rick401
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