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I AM GOING TO KILL MYSELF!!!!!!!!!!!
      #354835 - 01/25/10 08:42 AM
jason61

Reged: 04/12/07
Posts: 190


I just discovered that I might be intolerant to fructose.

As it stands I have celiac, severe dairy intolerance, multiple food sensitivities and am 16 lbs underweight. I also have gastritis and lately anything w/ fructose has been exacerbating my symptoms. If I now have to cut out fruits and vegetables from my diet i am gonna become anorexic and die. How the hell am I supposed to live this way?

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Re: I AM GOING TO KILL MYSELF!!!!!!!!!!! new
      #354836 - 01/25/10 08:51 AM
Syl

Reged: 03/13/05
Posts: 5499
Loc: SK, CANADA

Sorry to hear things are not going so good. One can survive on a very restricted diet. It is just a pain but not impossible. Severe measure like the one you claim in the message header are not really necessary

When you say you might be fructose intolerant how did you figure that out?

What tests did you have for celiac disease? A endoscopy? In a previous message you posted about this that this was unconfirmed. Has it been confirmed now?



--------------------
STABLE: ♂, IBS-D 50+ years - Science of IBS

The FODMAP Approach to Managing IBS Symptoms
Evidence-based Dietary Management of Functional GI Symptoms: The FODMAP Approach
FODMAP Chart & Cheatsheet
The Role of Food & Dietary Intervention in IBS

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Re: I AM GOING TO KILL MYSELF!!!!!!!!!!! new
      #354837 - 01/25/10 09:32 AM
Windchimes

Reged: 09/05/09
Posts: 581
Loc: Northern California

Jason, I want to give you a hug here.

There are answers to everything and it often can take a little time, though not always very long.

Can you seek a good gastroenterologist in your area? I actually see a great nurse practitioner in my local area who knows TONS about IBS. She has been such a blessing to me.

I have at times dropped as much as 16 pounds when under stress, only to have it come back again when I was relaxed and could eat healthy. Some of us don't want to eat when under stress (drop weight), while others can't stop eating when under stress (gain weight). Seemingly this is the nature of the mind-gut connection that is somewhat askew for all of us.

You CAN get a grip if you give yourself some time. Do not attempt to self-diagnose yourself. Forget reading all of the technical information and trying to figure that all out.

Take your attention to things you enjoy doing even if in small doses (moderation). Your appetite will return. I personally like warm chicken broth when I cannot eat much solid food, though I continue to add cooked rice and seasoning into this until I feel totally hungry for some 'real food'.

If you can relax, you will be able to stabilize your mind-body connection and your weight will return to normal.

For me personally, I have found that my symptoms do not depend so much on what I eat but rather the quantity and timing of intake (small portions), and for sure I need to feel relaxed when I eat.

Having friends and support systems are so very important to overall health!

My best to you, and do keep posting!



--------------------
Senior female, IBS-D, presently stable thanks to Heather & Staff

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Re: I AM GOING TO KILL MYSELF!!!!!!!!!!! new
      #354838 - 01/25/10 09:49 AM
Windchimes

Reged: 09/05/09
Posts: 581
Loc: Northern California

Syl,

I think what Jason was attempting to say here was that if he could not eat anything, he was going to lose his life from malnutrition. I doubt he was talking about deliberate suicide.

Frankly, sometimes too much info on these boards confuse people and they then become fearful.

What many need (myself included) is simply practical advice, loving understanding, encouragement, and not a lot of scientific evidence around this and that. Such info is already posted on Heather's info research.

No offense intended, Syl, but sometimes you seemingly get too much into technical info that even doctors don't read. Why would a patient want to read all of this? It can freak them out!

I'm not being mean here, yet I know the path of the pain that comes along with IBS in EVERY way. Sorry if I have wounded your ego in posting this truth.

People need friends and encouragement on these boards... i.e. practical information, love, and understanding... including what others have found helpful in overcoming current symptoms... not necessarily all of the 'medical lingo and studies' that make them more anxious than they already are.



--------------------
Senior female, IBS-D, presently stable thanks to Heather & Staff

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Re: I AM GOING TO KILL MYSELF!!!!!!!!!!! new
      #354840 - 01/25/10 10:58 AM
Gerikat

Reged: 06/21/09
Posts: 1285


Jason, if the tests have shown that you do have celiac, lactose intolerance, possible fructose intolerance, multiple food sensitivities, then I am not going to ask you for the details of every test, how they went about it, who it was administered by, and on and on and on. I am going to trust that you have had good medical care, and accurate results.

What you may have to do is find a good dietician, if you can afford it. It sounds like you may need help in planning a diet around your issues.

I am so sorry that you are having a tough time now.

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Re: I AM GOING TO KILL MYSELF!!!!!!!!!!! new
      #354841 - 01/25/10 11:24 AM
julieb123

Reged: 07/19/07
Posts: 728
Loc: uk liverpool

omg please don't am so so sorry for all you are going though and wish you lots of well and health and i do hope that the tests show that you haven't so you have some foods you can eat i hope you have good heath care and no you have all us on the board to help you at any time

--------------------
ibs c with trapped gas


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Re: I AM GOING TO KILL MYSELF!!!!!!!!!!! new
      #354845 - 01/25/10 03:47 PM
jason61

Reged: 04/12/07
Posts: 190


Celiac is still not confirmed because I have been on a gluten free diet for a while. But my stool antibodies for gliadin are still high even though the biopsy & blood work were negative. I chose to not do a gluten challenge and my GI doc , who is a celiac specialist, advised me not to. so i still dont know for sure.

As for fructose, seems like anything with sugar is irritating my indigestion/reflux and it just makes sense that i would be intolerant to fructose along w/ everything else. Im just amazed...my biopsy looked perfectly normal yet I am still having difficulty eating and absorbing nutrients. all my blood work is normal as well, save for an elevated liver enzyme (ALT)

im kinda in the dark and tend to self diagnosis...only time I was ever right was with the gluten but everything else i susopected was always false

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Re: I AM GOING TO KILL MYSELF!!!!!!!!!!! new
      #354846 - 01/25/10 04:28 PM
Syl

Reged: 03/13/05
Posts: 5499
Loc: SK, CANADA

Ah - interesting background on the celiac. Sounds like you have a good GI doc.

Do you think you might have fructose malabsorption and not fructose intolerance. Fructose intolerance is a hereditary disease normally detected in childhood. It is very serious disease.

Fructose malabsorption is the more common problem. It is a peculiar problem too. Let me explain.

Even though white and brown sugar contain fructose they also contain exactly equal amounts of glucose. Our bodies can digest fructose when it is accompanied with same amount of glucose.

In fructose malabsorption the difficulty arises when foods contain more fructose than glucose such as honey, high fructose corn syrup, some fruits and their juices. Some of us have difficult digesting the excess fructose but no problems with white/brown sugar. This problem can occur in normal as well as IBSers There is a breath test for fructose malabsorption if you think it might be a problem.

What fruits do you normally eat? What foods are giving problems?






--------------------
STABLE: ♂, IBS-D 50+ years - Science of IBS

The FODMAP Approach to Managing IBS Symptoms
Evidence-based Dietary Management of Functional GI Symptoms: The FODMAP Approach
FODMAP Chart & Cheatsheet
The Role of Food & Dietary Intervention in IBS

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Re: I AM GOING TO KILL MYSELF!!!!!!!!!!! new
      #354852 - 01/25/10 05:10 PM
jason61

Reged: 04/12/07
Posts: 190


Thanks Syl-

Well, interestingly enough ive been consuming pears like crazy for years and also notice that i feel poorly with melons, mangos, papays and apples...all high fructose fruits...also asparagus, onions and artichokes have been a problem lately..all contain fructans. I feel a bit better with bananas.

As for my gastritis...my new theory is that I may have been fructose sensitive (not intolerant) for a while now and since the gastritis anything with fructose is just irritating it & preventing it from healing..

when i was treating my candida...I was taking a lot of probiotics with FOS as well as a magnesium supplement which contained citric acid and wormwood...all together probly cause an inflammation


hows that sound?

Edited by jason61 (01/25/10 05:12 PM)

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Re: I AM GOING TO KILL MYSELF!!!!!!!!!!! new
      #354853 - 01/25/10 07:15 PM
Allisonmary

Reged: 01/03/04
Posts: 533


Syl's posts have always been extremely helpful to me.

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I love Syl's posts... new
      #354855 - 01/25/10 07:52 PM
Lisa Marie

Reged: 07/17/06
Posts: 1566
Loc: Lakewood, CO

... bring on the amazing, helpful, SCIENTIFIC explanations, Syl!!

--------------------
~~~~~~~~~~~~~~~~~~~~~~~~
Lisa, IBS-C (Vegan)
Stable since July 2007!
Mommy to Rhiannon Marie (Dec. 13, 2008)

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Windchimes *DELETED* new
      #354862 - 01/26/10 01:58 AM
capricorn1942

Reged: 10/06/03
Posts: 248


Post deleted by Heather

--------------------
ibs-d (pseudo)with pain and bloating

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Re: I AM GOING TO KILL MYSELF!!!!!!!!!!! new
      #354867 - 01/26/10 05:10 AM
Syl

Reged: 03/13/05
Posts: 5499
Loc: SK, CANADA

Oh - I didn't know you had gastritis. I guess it might be possible for fructose malabsorption to affect it but I have not read anything about it. For sure it excess fructose can make IBS symptoms worse. Hmmmm - I wonder if IBS can exacerbate gastritis and maybe the fructose bothers the IBS and the IBS the gastritis.

I have not heard of fructose sensitivity. As far as I know there is only hereditary fructose intolerance and fructose malabsorption.

Perhaps you will have to talk to your GI doc and see what he has to say.

Good luck


--------------------
STABLE: ♂, IBS-D 50+ years - Science of IBS

The FODMAP Approach to Managing IBS Symptoms
Evidence-based Dietary Management of Functional GI Symptoms: The FODMAP Approach
FODMAP Chart & Cheatsheet
The Role of Food & Dietary Intervention in IBS

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Ya what she said...nt new
      #354868 - 01/26/10 05:17 AM
dragonfly

Reged: 05/12/08
Posts: 1088
Loc: canada



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IBS-D since 1999...mostly stable..i do cheat too.Bad me.


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Hey Windchimes new
      #354870 - 01/26/10 07:02 AM
Gerikat

Reged: 06/21/09
Posts: 1285


Glad to see you back. I posted a quick note to you in the LR.

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Re: I AM GOING TO KILL MYSELF!!!!!!!!!!! new
      #354882 - 01/26/10 09:43 AM
shawneric

Reged: 01/30/03
Posts: 1738
Loc: Oregon

Jason, never self diagnose, it is the leading cause of misdiagnoses.

See a doctor and try to find a good dietian, not a nutritionist, but dietian to help you.

fyi






Since I have suffered for thirty eight of IBS I wonder what role foods play in IBS. So I asked Dr Douglas Drossman at the UNC Center for Functional GI and Motility disorders and here was his response. This is not a substitute for seeking medical advise from your doctor on any specific conditions you may have, but for educational purposes only.

Dr. Drossman is a Co-director of the Center and Professor of Medicine and Psychiatry at UNC-CH. He established a program of research in functional gastrointestinal disorders at UNC more than 15 years ago and has published more than 250 books, articles, and abstracts relating to epidemiology, psychosocial and quality of life assessment, design of treatment trials, and outcomes research in gastrointestinal disorders.


Dr Drossman's comments on foods for IBS Health.

Shawn,
To say that people with IBS may get symptoms from food intolerances is an acceptable possibility, since the gut will over react to stressors of all types including food (high fat or large volumes of food in particular). Furthermore, there can be specific intolerances. So if you have a lactose intolerance for example, it can exacerbate, or even mimic IBS. Other examples of food substances causing diarrhea would be high consumers of caffeine or alcohol which can stimulate intestinal secretion or with the latter, pull water into the bowel (osmotic diarrhea). The same would be true for overdoing certain poorly absorbed sugars that can cause an osmotic type of diarrhea Sorbitol, found in sugarless gum and sugar substituted foods can also produce such an osmotic diarrhea. Even more naturally, people who consume a large amount of fruits, juices or other processed foods enriched with fructose, can get diarrhea because it is not as easily absorbed by the bowel and goes to the colon where it pulls in water. So if you have IBS, all of these food items would make it worse.

However, it is important to separate factors that worsen IBS (e.g., foods as above, stress, hormonal changes, etc.) from the cause or pathophysiology of IBS. Just like stress doesn't cause IBS, (though it can make it worse), foods must be understood as aggravating rather than etiological in nature.

The cause of IBS is yet to be determined. However, modern research understands IBS as a disorder of increased reactivity of the bowel, visceral hypersensitivity and dysfunction of the brain-gut axis. There are subgroups being defined as well, including post-infectious IBS which can lead to IBS symptoms. Other work using brain imaging shows that the pain regulation center of the brain (cingulate cortex) can be impaired, as well as good evidence for there being abnormalities in motility which can at least in part explain the diarrhea and constipation. So finding a specific "cause" of IBS has grown out of general interest in place of understanding physiological subgroups that may become amenable to more specific treatments. Hope that helps.
Doug

http://www.ibshealth.com/ibsfoods2.htm



--------------------
My website on IBS is www.ibshealth.com


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Re: I AM GOING TO KILL MYSELF!!!!!!!!!!! new
      #354884 - 01/26/10 09:47 AM
shawneric

Reged: 01/30/03
Posts: 1738
Loc: Oregon

to much fructose might just be hard to digest period, it can have effects on digestion.

Jason really needs to talk more with his doctor about all this.

--------------------
My website on IBS is www.ibshealth.com


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