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new/alone/scared/frustrated
      #302304 - 03/15/07 05:12 AM
adam612

Reged: 03/15/07
Posts: 1


I'm so sorry to be one of those people looking for a diagnosis online, but I don't know where else to turn. I've seen many different doctors for the last few months, and yet no one seems to know what's wrong with me.

Since late Dec, I've had two main symptoms: sleep disturbances and abdominal problems.

I know that being woken up from sleep is rare with IBS, but I did see on this site that it's at least possible. And though it took awhile, there's no doubt that the sleep disturbances are stomach-related. Sometimes Maalox before bed can help me sleep through the night. Sometimes not. But always when I wake up suddenly, my stomach either hurts, or it's making noises, or I feel like I have to have a bowel movement. Sometimes I can spend an hour in the bathroom at 3am and even when I do poop I don't feel better.

The abdominal symptoms started the same week as the sleep issues. I have recurring pain (mild but uncomfortable) that ranges anywhere from my upper back to just below the rib cage, but most frequently the pain's on the sides of my ribs.

The gastro doctor has had me on several different reflux medicines, but none have helped. (Plus I don't seem to have any of the traditional reflux symptoms.) I think the chest pain is gas.

Quite often I'll feel very bloated. Like I can't even pass gas. Eventually, with some time and persistence, I can push out some solid, normal poop. But it always feels like there's more. Hours later I'll start to push out some less solid stuff, then eventually it gets really mushy. It's almost never diarehea though.

I've seen a cardiologist to rule out heart problems waking me up, a pulmonologist to rule out asthma. I've had mild sleep apnea for years but it's never actually woken me up. The gastro doctor has done an endoscopy and colonoscopy in the last months and has found basically nothing (there was a small hiatal hernia and internal hemorhoids, neither of which he thought was a factor). I had an adominal ultrasound, abdominal x-ray and CT. The CT revealed some enlarged lymph nodes in my groin which an oncologist is looking into for me (though at this point I've been told not to panic).

I'm also waiting for some tissue samples from the colonscopy to come back from the lab and just delivered a stool sample yesterday.

I guess the reason I'm writing is to ask if any of these symptoms sound like IBS. I have started drinking chamomille tea and eating white bread on an empty stomach in the last few days. In fact I've kept a pretty good food diary for weeks, and except for noticing that salad and wheat chex has me doubled over, I can't find the link between what I ate and how I feel.

Can I really be considered constipated if I'm having more than one bowel movement per day? Can it really be considered diarehea if it's mushy as opposed to liquid?

I feel like I'm running out of options here. I can't miss any more days from work and I have a 3 year old soon who I've barely been able to take care of lately.

Any opinions would be appreciated. Thank you.

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Re: new/alone/scared/frustrated new
      #302306 - 03/15/07 05:28 AM
caprice

Reged: 01/11/05
Posts: 69


I'm sorry but can relate. I have had every test and been on meds but still feel crappy. Have you been tested to for allergies like gluten or other? Also I think for me now I'm doing trial and error with my diet. What I noticed is everyone is different on the effects. Also I see a nutritionist that is trying to help me. I'm sorry I don't have more answers but I try to hold onto hope things got to get better.

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Re: new/alone/scared/frustrated new
      #302324 - 03/15/07 10:38 AM
K2

Reged: 01/29/06
Posts: 1191
Loc: Canada

Some of the symptoms sound like they could be IBS but some sound different.

The bowel inconsistency and feeling of incomplete evacuation is much like IBS. I'm IBS-D and rarely get real diarrhea, more like just overly mushy frequent bowel movements. Whatever the cause of your bowel problems, eating according to the diet on this website can help a lot.

The pain you describe (upper back, around the ribs etc) does not sound much like IBS or reflux. I would ask the doctors to check your gallbladder, liver and pancreas to make sure there are no problems (the abdominal CT or ultrasound may have already covered this). Gallbladder problems can cause IBS-like symptoms along with pain in the upper abdomen. Try to also be specific when you describe the pain, location, intensity and frequency/timing.

I hope you find some answers soon, but stay patient. Your doctors seem to be trying hard to figure it all out, and running proper tests.

--------------------
Kat

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Re: new/alone/scared/frustrated new
      #302356 - 03/15/07 09:26 PM
karen42

Reged: 03/12/07
Posts: 18
Loc: Atlanta area

I can relate to how you're feeling! I've had similar symptoms that you describe, in the back and just below my ribcage in the stomach area. Lots of tests, nothing definte, except one dr suggested IBS. I also have lots of rumblings, bloating and gas in lower intestines. I had acid reflux prior to all this, but have greatly reduced what I eat so that isn't a problem anymore. I have alternating bms, but that's not a big problem for me (which is why I'm still having my doubts about IBS and continuing to do more tests). I also went to the cardioligist and was checked for asthma (because I get wheezy at times). The funny thing is I have started Heather's diet and it seems to helping somewhat. The peppermint tea has been great for reducing some of the bloating and definitely for the rumbling in my stomach. Sorry I can't be more helpful, but when you do figure it out, post it here!

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