HELP!
#252268 - 03/15/06 04:49 AM
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I'm new to message board. I've actually never been on a message board ever! So, I have no idea what I'm doing!
I have irritable bowel syndrome and have for years. I also have mild to moderate relaxed pelvic floor.
My question is quite embarrassing but I've not found help in any form (through GI doctors, internists, gynecologists, colon-rectal doctors). I'm wondering if the IBS, in addition to the pelvic floor problems, is part of the cause of my problem and if the IBS diet will help, or perhaps resolve, the issue.
Here goes: I'm having fecal incontinence during intercourse, only during intercourse. Is this something that anyone else is dealing with or has dealt with?
This is not my only IBS symptom but this is obviously a big concern. This has been going on consistently for about 3 years and off and on for longer than that. This happens 95-100% of the time.
HELP!
Thanks.
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I'm sorry to hear no doctor has been able to help you! How frustrating!
I haven't had this problem, but I was wondering if you have tried taking Imodium before having intercourse? Loperamide/Imodium is said to strengthen anal sphincter tone - so maybe this would help. I'm thinking maybe 1 caplet beforehand would be enough, without making you constipated. What type of IBS do you have? A, C, D?
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I don't know what type IBS I have. How do I determine the type?
Haven't tried Immodium. I have tried every thing all the doctors have suggested, even having a nerve stimulator device implanted. It didn't help at all so it was removed. I take prescription Miralax every day to attempt to keep me cleaned out, but it's not working. He also suggested Glycerin suppositories before intercourse. Of course the Immodium and Glycerin suppose you know about an hour before intercourse that intercourse is very likely to happen, otherwise you woudn't take them.
Apparently sphincter tone isn't the issue as they say my tone is fine, it's the squeezing of the sphincter muscle that doesn't appear to be working.
Thanks for your input.
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Re: HELP!
#252453 - 03/16/06 08:01 AM
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Johnny T. Reb
Reged: 07/09/05
Posts: 987
Loc: Lake Linden, Mich in the U.P. IBS-C
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Hi Steph, Of course, I haven't had that, but I do know a fair amount about pelvic floor problems and their repercussions,as I have one myself(anorectal junction decent, 3.8 cm). If you can tell me exactly what your pelvic floor problem is, I may be able to give you some advice. Be as specifically technical as you can. I know most of the medical jargon by now. -Bob
-------------------- <img src="http://www.math.mtu.edu/~rwkolkka/BritPicA.jpg">
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-------------------- Kat
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Thanks again Kat! But I swear, it was gone!! I even checked back a dozen pages where it couldn't even have slipped back too. Well, like I was telling Sinead, it must nasty Leprecaun' s up to no good tricks just before St.Patty's day! -Bob
-------------------- <img src="http://www.math.mtu.edu/~rwkolkka/BritPicA.jpg">
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Re: HELP!
#252569 - 03/16/06 04:20 PM
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Letty
Reged: 03/15/06
Posts: 20
Loc: Bullhead City, Arizona
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I, too, am new to the board, but have had the incontinence you mentioned. Surgery was the only answer. Rectocele, to be exact. I have IBS-D. So it was a bad situation. The surgery was very successful. So I no longer have that problem. I understand your pain. And thanks for sharing....thought I was the only person in the world who had that problem.
-------------------- IBS-D,ACID REFLUX, PANIC ATTACKS
?How do I live without my Cholula Hot Sauce?
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Thank you. I, too, am glad to finally hear of someone else who has this same problem.
How long ago did you have your surgery? And, if you don't mind me asking, how old are you? I feel so terribly young to be having this problem. I'm 42 and this has been going on consistently for a few years already. I'm also beginning early menopause. Ugh! Sometimes I feel like I'm 80!
We've talked a little about surgery but the doc says it's possible it won't help, although it's also possible it will help. I'll see him again in a few months and see if he has any new ideas.
Thanks.
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IBS-C is Constipation
IBS-D is Diarrhea (sp?)
IBS-A is both
There is a "Common Abbreviations and Explanations" posting in this forum that is very helpful. I'm sorry to hear about your problem. I wish I had an answer for you but I never had this happen. I hope that you and your doctors and able to work out a solution.
-------------------- ***********************
If you're not dead, you've still got time.
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Thanks. Well, I must be IBS-A.
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Re: HELP!
#252913 - 03/18/06 11:37 AM
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Letty
Reged: 03/15/06
Posts: 20
Loc: Bullhead City, Arizona
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I had my surgery in Sept 05. I am 52 years old. But during this last year, I've started to feel like I'm 75. Surgey always takes so much energy from you. It ages you. And then the IBS. I'm sure I'm close to a depression also, since I'm having these panic attacks. But AT LEAST THE POOP AND PEEPEE LEAKAGE problem have been eliminated. Maybe, just maybe, I can start to feel like a woman again! I actually started leaking over 15 years ago. Just a bit. But I was always active and I wouldn't let it bother me. But last couple of years, I couldn't exercise, have sex, pick up grandkids, dance SLOW...anything. The surgery was a blessing. It was invading, but like I said the worse is over. So if you do have to have surgery, know that in time, it's better than those horrible accidents in bed! Good Luck! And None of Us are Alone!
-------------------- IBS-D,ACID REFLUX, PANIC ATTACKS
?How do I live without my Cholula Hot Sauce?
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Thanks.
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1. Rectocele 2. Cystocele 3. Enterocele 4. Sigmoid colon drops way down into pelvic floor (could require a resection of part of sigmoid colon); redundant sigmoid colon
With the exception of the last, these are all in early stages at this point (at least that's what I'm understanding).
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Re: HELP!
#253067 - 03/19/06 12:20 PM
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Johnny T. Reb
Reged: 07/09/05
Posts: 987
Loc: Lake Linden, Mich in the U.P. IBS-C
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Hi Steph, My goodness, you have all three cele's! Well, your rectocele is the problem that's causing the incontinence.Your GI doc, or even Gyno should've told you that. That puzzles me. Since the rectocele is causing incontinence, it need's to be fixed surgically. It is not a complicated high risk surgery, and it's success rate is nearly 100%. I have never perform- ed it myself. I'm a Math Professor working in engineering science. However, I did stay at a Holiday Inn Express. But seriously, you should ask Letty who responded to your post , since she's actually had the procedure, and it was suc- cessful. I'm sure she can fill you in on the details. The other two cele's don't typically need surgery,they can be treated by treated by methods such as Kegel excer- cises. As for your sigmoid colon,since it's not causing you real bad C, you shouldn't need it chopped.That kind of surgery could lead to adhesions and other subsequent prob- lems. Another thing that sounds anomalus is that most women get these cele's shortly after childbirth. I checked your profile and that's been 17 years for you. So these cele's developing now is rather unusual. Well, that's about all I can tell you. Don't worry about the rectocele surgery, I'm sure Letty will tell you that it's not that big a deal. I wish you the best!!! -Bob
-------------------- <img src="http://www.math.mtu.edu/~rwkolkka/BritPicA.jpg">
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Thanks, Bob.
Surgery has been considered. We, the doctors and I, haven't yet decided. However, it is a little more complicated than just a rectocele.
All these 'cele's haven't just begun to be a problem. This has been a small problem for many, many, many years; it has just now, over the past 3 years become a daily problem with severe constipation and a problem with intercourse 95-100% of the time. The "remedies" for the constipation haven't worked so well, unless they take me to the other extreme. Even being in the other extreme doesn't alleviate the incontinence. I haven't had what you might call a "normal" BM in many, many years. (perhaps that's partly due to the sigmoid colon problem and partly due to IBS; don't really know)
Also, I have done the Kegel exercises and have even had 6 weeks of electronic stimulation of those muscles. The bladder problems are not at all severe so I'm not going out of my mind about those.
However, the bowel problems, and the bowel incontience problems are driving me insane!
I did correspond with Letty. Her surgery was successful. I don't know if it was the same kind of surgery that may be needed in my case.
Thanks for your help.
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Re: HELP!
#253190 - 03/20/06 11:44 AM
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Johnny T. Reb
Reged: 07/09/05
Posts: 987
Loc: Lake Linden, Mich in the U.P. IBS-C
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Steph, You're very welcome. Yes, I was thinking that the surgery in your case could be a bit complicated. What occured to me is that with your redundant sigmoid colon problem,they may want to address that at the same time they fix your recto- cele problem instead of having two surgeries. I didn't realize you were having severe constipation problems.A redundant sigmoid does definitely do that because the stool has problems going around the turns particularly since they are often very sharp turns.Well, I do have some good news,and it's not GEICO insurance. A good friend of mine at school here had a redundant sigmoid with a fair amount of diver- ticulosis in it and he recently had it resectioned. It's only been a month since the surgery, and he's doing great now! Happy as a clam in mud. Before the surgery, he could 'nt go to work and could hardly go out of his house, in real bad shape. Now, he's like a new man! Well, from what you've told me, it sounds like your in good hands with your doc's, and I think you'll come out of this in much better shape! Good luck with everything! -Bob
-------------------- <img src="http://www.math.mtu.edu/~rwkolkka/BritPicA.jpg">
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