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Re: Are we sabotagizing ourselves? new
      #231387 - 12/13/05 06:27 PM
dmdentre

Reged: 06/09/04
Posts: 47
Loc: New England

Please know that this was ONE study. Only one study with only 108 people in it. This should not be correlated to everyone. We are all different and need to do what is best for us. If you are concerned about have antibodies to wheat, you should get yourself tested (you can go to York Labs online to find the tests). Eliminating wheat altogether is something you should really do with a dietician if you want to try it. Good luck.
Danielle

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Re: Are we sabotagizing ourselves? new
      #231393 - 12/13/05 06:51 PM
jen1013

Reged: 05/06/05
Posts: 1322
Loc: the wabe

I remember that study. But when you look at it ... I dunno, 108 people out of how many millions of people with IBS? Meaningless in my book. I bet you could also find 108 people with IBS who also have tons of nasal hair, but that doesn't mean that IBS causes excessive nose hair.

you say "how can I ignore the facts" ... it is not a fact that wheat is bad for IBS. What you CAN ignore is a very vague article about a study with a small sample size. It's not worth the stress. And if you really think wheat might be making you worse, then cut it out. It won't kill you, and if it makes you feel better mentally to know you're avoiding something that might be making you worse, well, no harm in that.

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jen

"It's one of the most serious things that can possibly happen to one in a battle -- to get one's head cut off." -- LC

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I wish they would look into this further too new
      #231461 - 12/14/05 07:16 AM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois

If wheat is an issue, then many people will not have a chance of getting better.

I personally am now afraid to eat any type of wheat product, just in case.

I did go on a totally GF diet after having tested high for gluten antibodies 3 times, but the diet only turned me from chronic D to chronic C....all the other symptoms (pain, gas, bloat, spasms) were just as bad. And the C is more painful than the D for me, personally.

The doctors cannot agree on if wheat and gluten is a problem for me. One tells me to eat it and one tells me I cannot eat it.

I know this study was based on a small group of people, but still, it showed the antibodies for wheat were present. For those who are not finding relief, do we want to take the chance of eating it? I just don't know and I am very stressed and conflicted about this. It was interested to read everyone's viewpoints, but I am super cautious and if I read anything negative about a food, I become fearful of it. If I were stable, I would be much more willing to eat it to test it. But when you aren't stable...or anywhere near feeling better, it's hard to take any chance at all with any possible problem food.

How do I lose this fear? Or should I be cautious and abstain since I am so sick still?

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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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Re: Are we sabotagizing ourselves? new
      #231463 - 12/14/05 07:24 AM
sgebhardt

Reged: 08/19/05
Posts: 49
Loc: Alberta, Canada

I don't know. I'd rather follow the IBS diet Heather has laid out and ease some of the suffering than tough it out. The way I look at it is this: do you want give up some foods to ease the pain now or tough it out for God knows how long? Could take years before it would clear up if it does. I'd rather not take the chance. I'm fine with giving up some foods. Now I'm just a newbie and still trying to pass on the tempations but I know I'll get there someday. The foods I have to give up just add more pounds to the hips anyways.

--------------------
Cheers!

Sher
IBS-A

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But this diet does not give up wheat products new
      #231464 - 12/14/05 07:27 AM
Cyndy

Reged: 03/05/05
Posts: 1301


I don't get the dairy thing though. I agree, we should give up foods that make us suffer...but wheat may be one of them. Is wheat one of the foods you are giving up?

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Re: But this diet does not give up wheat products new
      #231465 - 12/14/05 07:31 AM
sgebhardt

Reged: 08/19/05
Posts: 49
Loc: Alberta, Canada

I try not to eat insane amounts of it, but I haven't given it up. It doesn't bother my tummy. There are some days where I can't eat anything; on those days it bothers me. But on my good days its fine. I do find that if I have eaten too much wheat in one day then yes, it tends to upset my tummy a little. But if I keep it to a lower level, then I'm fine. I usually make my own bread too so that way I know what's in it and that way I can keep it lower in fat too. But if excluding wheat helps you then why not give it a try? Do what works for you, right?

--------------------
Cheers!

Sher
IBS-A

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Beth, you gave it a good try! new
      #231475 - 12/14/05 08:11 AM
Linz

Reged: 09/01/03
Posts: 8242
Loc: England

I don't think you need to worry about this. You gave gf a very VERY good try and it didn't help at all. So don't stress about it.

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Re: Are we sabotagizing ourselves? new
      #231549 - 12/14/05 12:30 PM
Sand

Reged: 12/13/04
Posts: 4490
Loc: West Orange, NJ (IBS-D)

Today seems to be my day not to understand stuff. I'm not sure what you mean when you ask "For those who do eat wheat, how can you justify it knowing the results?" I eat wheat and I'm stable, so the results from the study don't really mean anything to me - and wouldn't even if they'd done the test on 108 million IBSers rather than 108. (The proof of the pudding is in the eating, so to speak. ) On the other hand, if I'd tried Heather's diet and hadn't gotten stable, I would have gone on to try other things and I imagine a strict elimination diet under medical supervision would have been one of those things.

I think Heather's great - she definitely saved my quality of life and she may have saved my life. Nonetheless, given that her guidelines work for some and not for others, I think her diet has to be considered a starting point, one possible path. If it's not working for you, then I think food elimination is a good thing to try and I agree with the poster who said the best course would be to do it with professional help.

--------------------
[Research tells us fourteen out of any ten individuals likes chocolate. - Sandra Boynton]

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Re: Are we sabotagizing ourselves? new
      #231680 - 12/14/05 06:34 PM
Cyndy

Reged: 03/05/05
Posts: 1301


Quote:

I'm not sure what you mean when you ask "For those who do eat wheat, how can you justify it knowing the results?"




I meant, how can we (I) allow myself to eat wheat, now that the study has shown that IBS folks have antibodies to it. How do you get passed the fear, knowing the results?

Isn't there always a chance things could be better if we abstain from wheat? I don't know...I'm just really scared of wheat now. No matter how small the study.

I can't afford a dietician to help me with the elimination diet. It would be ideal though.

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Please don't let this study run your lives... new
      #231921 - 12/15/05 05:43 PM
HeatherAdministrator

Reged: 12/09/02
Posts: 7799
Loc: Seattle, WA

it was small scale, and not all of the IBS patients showed antibodies to the foods tested. Also, there's nothing to indicate that people were screened for celiac before being allowed to participate in the study. Finally, the study actually notes that the presence of antibodies to the foods did not actually correlate with an increase in IBS symptoms.

So - trust yourself and your own body's reactions, not this single study.

- Heather

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Heather is the Administrator of the IBS Message Boards. She is the author of Eating for IBS and The First Year: IBS, and the CEO of Heather's Tummy Care. Join her IBS Newsletter. Meet Heather on Facebook!

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