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Re: No, your'e right... Zelnorm is NOT for D people --A little more info.....bump new
      #205785 - 08/16/05 04:51 AM
LtDanFan

Reged: 12/17/03
Posts: 588
Loc: Ohio

Okay, this is my bowl habits and how I explained it to my doc and what he said. I took my diary of food and showed him how much fiber I eat a day and along with SFS. He asked me if I didn't eat fiber and take the SFS how would my bowels be and I told him I probably wouldn't go every day or every other day. So I think he's basing me trying the Zelnorm on that. WHEN I having a normal, attack free BM everyday, (graphic here, sorry), I have no pain and I go it is usually not a nice semi-solid bm, it's usually pieces, but I go, I don't have to strain and maybe some people would consider it constipation, since it's balls, but I go with no pain and straining. This is usually when I'm attack free eating between 18/20 gm of fiber a day, along with tons of water. When I have an attack, I would say 80% of the time, I have the pain sometimes up to 5/6 hours before I can even go and when I do it's hard at first, followed by the explosive D, for about 4 or 5 more movements. Since I always end up with D, I have considered myself D. I do occasionally have episodes when it's just explosive. BEFORE I was taking this much fiber, if I had one of my D attacks where I would go like 5 times, I wouldn't have a BM for about 4days, than I'd get back on track for a little while. So am I D or C??? Personally I'd live with being either if I didn't have the un Godly pain. My last colonoscopy showed an area in my decesending colon that completely shuts and he had to blow a ton of air into my colon to open it to finish the test, and that is where my pain is, almost always. I have been on every IBS pill there is and have been on LIbrax for about 10 years, I have with the help of Heather's diet and my fiber dropped from 3 a day to 1 at bedtime, I had horrendous attacks taking 3 a day, but it worked better than any other meds I had taken inthe past, so we went with the Librax. I do know one of the side effects of Librax is constipation. So since I had attacks taking 3 and with the help of this diet I have dropped it to the 1 at bedtime. My doc still wants me to take it, he even said if it doesn't make me too lethargic to take it 3x a day with the zelnorm??? So I hope I have explained the life and times of Cheryl's IBS lol. So, if I try the Zelnorm, I'm going to try it this weekend when I don't have anything major going on and can run to the toilet if I have to. And it's funny how the Dr.'s never want to sit and discuss the fiber differences and how to eat, etc. they just think a pill will solve it all and make you think you can eat whatever you want, when I told him I basically live on carbs, I think he thought I was an idiot, but never offered any eating advise.
In my next house I'm just putting my bed in the bathroom.

--------------------
IBS-D, extreme pain and cramping - GERD - lactose/dairy intolerant, OCD, Fibromyalgia
DX: w/ Multiple Sclerosis 3/10
I can do all things through Christ who strenghtens me. Phil 4:13

Edited by LtDanFan (08/16/05 05:06 AM)

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Jeez! new
      #205791 - 08/16/05 05:30 AM
Linz

Reged: 09/01/03
Posts: 8242
Loc: England

I would make an appointment or call the GI asap and ask why the hell are you on Zelnorm when you're A tending towards D NOT C! That sounds sooooo bad for you. Your symptoms are actually very similar to mine it would seem btw.

And I would actually get another opinion/doc if you can. Ramping up your meds doses to counteract their side effects is such a bad idea with IBS - it could make you soooo much worse. What the hell's wrong with doing the diet, SFS and cutting down on meds?

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Yeah, agreed! new
      #205795 - 08/16/05 05:37 AM
atomic rose

Reged: 06/01/04
Posts: 7013
Loc: Maine (IBS-A stable since July '05!)

Even if you do want to consider yourself as having SOME C, you do also have D, and Zelnorm is very specifically NOT for people who have D *at all*.

Your GI is an idiot. I'd really get a second opinion if I were you.

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Re: Jeez! Linz, I ditto that new
      #205797 - 08/16/05 05:38 AM
LtDanFan

Reged: 12/17/03
Posts: 588
Loc: Ohio

I didn't understand it either, but he is known all over this area as being the "best". I'm so confused, I just want it all to go away.....................I want to eat what I want to eat, if you know what I mean, I'm sure everyone gets this way!!! We'll see I have a test Thursday and some other stuff next month...........Thanks

--------------------
IBS-D, extreme pain and cramping - GERD - lactose/dairy intolerant, OCD, Fibromyalgia
DX: w/ Multiple Sclerosis 3/10
I can do all things through Christ who strenghtens me. Phil 4:13

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Re: Heather: Zelnorm for IBS-D???? new
      #205839 - 08/16/05 08:00 AM
Johnny T. Reb

Reged: 07/09/05
Posts: 987
Loc: Lake Linden, Mich in the U.P. IBS-C

Hi Laurel, Yeah, my GI doc told me that it wasn't just necessarily for women, tried on me, and I found out otherwise.
I took it for nine days and developed a severe allergic reaction, rash, severe D, and all. After I stopped it, the D
still lasted for two weeks! It was a very nasty experience. I
definitely would not recommend that any guy take it. -Bob

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<img src="http://www.math.mtu.edu/~rwkolkka/BritPicA.jpg">

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Re: Heather: Zelnorm for IBS-D???? new
      #205873 - 08/16/05 09:21 AM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

Hmm, Well I'm most definitely C and I agree, sometone with constant D shouldn't take Zelnorm. However, the drug is SUPPOSED to regulate your colon. It sounds to me that your colon is going to slow for a while than too fast, causing the swing from C to D. So, maybe the dr is thinking if the Zelnorm regulates your colon, maybe you could find a happy medium? Thats my best guess! However, I will say that even being a C, the zelnorm gives me D for the first day or two a take it!

--------------------
Taking it one day at a time.....

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NO! Zelnorm is NOT for diarrhea, period. And it is NOT for men, new
      #205898 - 08/16/05 11:21 AM
HeatherAdministrator

Reged: 12/09/02
Posts: 7799
Loc: Seattle, WA

as it hasn't been proven safe or effective. It is ONLY for women with constipation and NO diarrhea. Novartis, the drug manufacturer, makes that crystal clear in all of their literature. Any doc who says otherwise has a lot of explaining to do.

- H

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Heather is the Administrator of the IBS Message Boards. She is the author of Eating for IBS and The First Year: IBS, and the CEO of Heather's Tummy Care. Join her IBS Newsletter. Meet Heather on Facebook!

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Re: NO! Zelnorm is NOT for diarrhea, period. And it is NOT for men, new
      #205975 - 08/16/05 02:58 PM
retrograde

Reged: 04/15/04
Posts: 1569


Yikes, this thread is scary! I can't believe how many docs (GI specialists no less!) are prescribing IBS drugs incorrectly!

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Re: NO! Zelnorm is NOT for diarrhea, period. And it is NOT for men, new
      #205985 - 08/16/05 03:25 PM
jaime g

Reged: 07/27/05
Posts: 961
Loc: new york city

incidentally, where the first run of zelnorm commercials used only women (holding their shirts up to show their bellies, seemingly written on in magic marker), they've now started playing one that features men as well. (i work in commercials, partially, so i pay attention. then, you add ibs to the mix...)

--------------------
jaime
ibs-a (mostly d) // vegetarian

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Re: NO! Zelnorm is NOT for diarrhea, period. And it is NOT for men, new
      #205997 - 08/16/05 04:25 PM
LtDanFan

Reged: 12/17/03
Posts: 588
Loc: Ohio

Well, thanks to all you I have decided not to take the Zelnorm. I know I do not have D everyday and if I didn't eat fiber I would probably be C, but the fact is, I take and eat lots of fiber everyday, eat the safe stuff, and my bm's ALWAYS end with explosive D, or start with it, so, I'm scared to even take one Zelnorm. Thanks everyone. I'm gonna wait for all my test results and go from there and continue with what I'm doing. You guys are such a great support group.

--------------------
IBS-D, extreme pain and cramping - GERD - lactose/dairy intolerant, OCD, Fibromyalgia
DX: w/ Multiple Sclerosis 3/10
I can do all things through Christ who strenghtens me. Phil 4:13

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