Who named this thing
#201997 - 08/03/05 07:17 AM
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goodcop1
Reged: 08/02/05
Posts: 58
Loc: Hilton Head South Carolina
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Does anyone else get really upset about the name of this Irritable Bowel Syndrome. It no where near describes how horrible it is to be afflicted. It's like when you ask a doctor if a procedure hurts and he says it may be uncomfortable.  I have a very high pain tolerance but when it comes to IBS sometimes I just cannot stand it anymore.
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"Thru Him with Him and in Him".
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What should we call it? Wretched Bowel Syndrome? So-painful-I'm-screaming syndrome? Bloated, gassy, crampy syndrome with A, C, or D?
I'm only half joking here...I'm with you! It is a pretty mild name for a chronic illness that had me on the floor in pain, accompanied with vomit, and other symptoms!!!
Cool post...  Thanks for giving me something to think about on an overcast Wed.! 
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Formerly known as Ruchie
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Oh, I totally agree!! "Irritable" doesn't even begin to describe the pain! And people don't seem to take "Syndromes" of any kind too seriously! Not sure what we should call it but something along the lines of agonizing abdominal affliction is closer to the truth! 
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Taking it one day at a time.....
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How about a contest for a new name! I am tired of people saying "Oh you get tummy aches" when you tell them you have IBS. No, I get the feeling like my guts are being ripped open, NOT TUMMY ACHES!
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"Thru Him with Him and in Him".
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It describes it quite well. Your gut acts like an irritable child needing constant coddling and if any little thing doesn't go its way it freaks out! The problem is in what people feel the name means and the condition is like. Society needs to be more aware of what living with a spoiled, irritable, crabby, walking-on-eggshells gut is like!
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IBS-A for 20 years with terrible bloating and gas. On the diet since April 2004. Remember this from Heather's information pages:
"You absolutely must eat insoluble fiber foods, and as much as safely possible, but within the IBS dietary guidelines. Treat insoluble fiber foods with suitable caution, and you'll be able to enjoy a wide variety of them, in very healthy quantities, without problem." Please eat IF foods!
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Carol
nós somos o que nós somos e o descanso é merda
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Taking it one day at a time.....
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OR ...
#202017 - 08/03/05 07:53 AM
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Portageegal
Reged: 06/28/05
Posts: 940
Loc: Massachusetts
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Imobilizing Balistic $h!t$
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Carol
nós somos o que nós somos e o descanso é merda
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How about Infinite Bowl Sitting
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"Thru Him with Him and in Him".
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Hi Jim, Yeah, I hear ya!! I think it's a lot worse than some
illness's people get disability for. Welcome to the boards.
-Bob
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<img src="http://www.math.mtu.edu/~rwkolkka/BritPicA.jpg">
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You're right about the naming thing. Although it's accurate, in a way, a lot of people snicker when I mention it. But my problem is that everyone always wants to know what's wrong but when I say IBS they don't take it serously! It's like IBS has become the booger joke of the adult world--gets a laugh every time. So, I've found the best response, for me, is to say I have a functional bowel disorder. (1)They take my problem seriously, (2) they stop bugging me with questions. Here's what happens when I say "Functional bowel disorder":
"Functional" - They don't exactly know what this means, so they start thinking...not giggling. (Confusion works to my benefit.)
"Bowel" - Whoa! TMI! is the reaction I see on their faces.
"Disorder" - Again, they're not quite sure what this means, but because I've linked it with bowel and another ambiguous medical term they go, Ooh, serious problem that I don't think I want to know more about.
Then I add in pain predominant just to make the point that this condition is not easy nor dismissable. To me "irritable" just isn't descriptive enough and it's an adjective that seems like a judgment call. Might as well call it "stubborn" colon or something.
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Perfect! Lol!
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Same response from some members of my family. Of course it's ignorance. Thank God for my wife, as she battles for me when I get frustrated. One of these days though I am going to give someone a good uppercut and ask them if they feel a little Irritable.
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"Thru Him with Him and in Him".
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Maria!
I love your description!
For even more impact, you could add that your "functional bowel disorder" is in the same family as Crohn's and colitis because that's what my doctor said when he told me I had IBS. He said IBS is at the lower end of that family of illnesses.
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Ooh! Good point! I'll add it in as needed. 
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it's outraged!
I love your description. I think the word bowel (any place outside this board) is an automatic shut down! Gets the same effect as the "female problems" response!
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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I'm not LOL!!! You nailed this one, Maria. "Functional Bowel Disorder" is the term I use, too, and I think you captured their reaction with FUJI Film! Deep rhetorical impact, yet again.
Kate.
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