When will the SFS wear off?
#134083 - 01/01/05 03:15 AM
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RnbwConnection78
Reged: 05/05/03
Posts: 137
Loc: Bensalem, PA (right outside of Philadelphia)
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I stopped taking the SFS after my morning dose on Thursday. I have been having explosive D since the day after I started it. Everything I eat is making me so terribly sick. I am still having a lot of D. Do you think this is just a flare up or is the SFS still working? When will it go away?
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It sounds to me like you're having a flareup. I had a lot of problems from the first SFS I took (Citrucel), and when I quit it, I was back to normal within a day or two. Sorry you're feeling so crappy (hah, sorry  ) - hope you feel better *really* soon!
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hey there...this sounds familiar...I tried the acacia over a month ago and I am mainly ibs C...I had the worst D EVER!! The worst nausea...the worst IBS basically! I stuck with it for four days and then couldn't cope anymore...felt better within 24-48 hours...I would try a different one..your reaction is not meant to be that extreme. hope you feel MUCH better soon.
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I agree with Dalia. I think you were taking Benefiber right? A lot of people can't handle the guar gum. Perhaps Citrucel, fibercon, or acacia would be better? Or Equalactin for now. A lot of people have reported success for that one when they are experiencing attacks. It seems to calm them down. It is too expensive as a maintainence SFS but maybe it will help your body get used to an SFS and then you could handle a different one for maintenance later. GL.
I too am trying to find an SFS that my body will tolerate. I am SO C, that I feel I need something to help even if I get bloating and gas. Right now I am experimenting with FiberChoice, also citrucel and always a few equalactin a day for safety.
Do a search on equalactin to see what others have said about it. Sound positive for others.
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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Did you ever go back to another SFS after your bad Acacia experience? If not, how do you manage the C without SFS? Is it possible? I have big problems with SFS but everytime I try going without, I can't have a BM.
What's your secret? Please share your story!
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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hey there!
well, i haven't tried a new SFS and don't intend to in the near future...my ibs is slowly improving and i am managing the c with my diet...I get C if I have too much white stuff (white bread, crackers and rice) so I balance with brown rice, and my sandwiches are half white bread, half wholewheat...I try to eat lots of vegies, mainly cooked, with carbs...I am by no means in perfect shape, but certainly better then I was...and the acacia experience kind of scared me, that D I got was AWFUL!! I always hoped to manage my IBS with my diet and not rely on supplements because I personally think it is better that way..but of course everyone is different, and if I was offered a magic pill I would be taking a million of them a day!
I went off the pill a few months ago and am hoping that this slight improvement I am feeling is due to that, I find exercise is VERY important with ibs c...uhhmm...what else...thats it!
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Feel the fear and do it anyway!
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Do you use a bakery bread, or a store bought brand? I guess it wouldn't matter for me, though since I do GF and all that stuff is made of white rice flour. Could be part of my C problem as I have the rice bread and rolls every day. Also, could you recommend some types of exercise that are good for C, or do you just walk? Kind of cold to walk now a days!
I think you may be right about going off the pill.
I am scared of brown rice and wheat in general! But I would love to manage this with no SFS! But like you said, if there were a pill to take, I'd be first in line, well probably way back in line, as I'm sure the line would be quite long  When are these docs going to get their butts moving on this IBS treatment? They say nothing is even expected to be out for years. 
Oh, one more question. What veggies do you find most helpful for C? Do you do carrots, squash, mushrmooms...
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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hey I was gluten free for a few years and then realised i only get discomfort if i eat too much wheat, so i bake cakes and stuff with rice flour sometimes to ease the gluten load.
i buy fresh bakery bread ( I am passionate about nutrition so really avoid junk, and the store ones are full of junky stuff) where I can know exactly what is in it. I would say that the rice stuff is clogging you up.
do you enjoy baking? because if you do, you can yourself little rice flour loaves/cakes with a mixture of brown rice flour and white rice flour...I find if I bake with too much brown rice flour it makes my poos a little too loose when they finally decide to emerge!
exercise: allll exercise helps - yoga, walking, cross trainer, sit ups...it alllll helps...I do a mixture of all of them.
I TOTALLY relate to the 'being scared of the brown stuff'...just as I was reading your reply I was eating a sandwich with half white and half wholewheat bread and I got a flashback to a few months ago when wholewheat just terrified me...and brown rice. start gently, with a half half combination and move from there...be gentle with yourself,...but remember the brown varieties are also more nutritious, which means stronger immunity etc
vegies; squash, carrots, pumpkin, green beans, asparagus (but not too much - gasy), raw baby tomatoes, avocadoes,potatoes, sweet potatoes, yams, cooked spinach...
I also can tolerate quite a bit of fat thankfully and I find olive oil and nut butters help me to keep regular...but I would never go near anything deep fried,...the thought of it terrifies me!
I would def consider going off BC pills if you suspect they could have something to do with the ibs deterioating.
good luck!!
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Thanks for all the info Dalia. You certainly are going into the right profession as you practice what you preach.
I wonder if I could go back on gluten too and just use the flours to "light the load" as you say. I'll have to think about doing a gluten challenge.
One more question for now, I promise, do you do the avocados and tomatoes raw? Or fruit raw? Do you think doing them raw would be more helpful for C than cooked? Although raw is yet another fearful challenge!
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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hahahha raw is certainly something i was and still am frightened of...the thought of salad leaves still terrifies me!! but i eat about 5 cherry tomatoes in a sandwich with raw avocado (about a 1/3rd of an avocado in one sitting)...and thats my raw vegies. I now eat apples without the peel, bananas, mangoes, nectarines and peaches without the peel, and want to try pears...I still have a lot of cooked fruit though!
were you diagnosed as celiac? what made you go gluten free in the first place?
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I had the both blood work and a biopsy done for celiac. Two of the tests (IgG and IgA antibody) came back high positive, but the one most specific for celiac (endomysial) came back neg as did the biopsy and the celiac gene blood test.
My GI doc wanted me to try GF because he feels I may have latent celiac or a general gluten intolerance. But as I said in other posts, it hasn't seemed to help my IBS symptoms a whole lot being GF only turning my chronic D to chronic C! So I've been thinking of trying to eat it again. I don't know though considering I did have high antibody test results.
Why did you decide to try GF? Did you just try it on your own or did someone suggest it to you? You did it for a long time! Isn't it the pits. I mean IBS diet has enough restrictions. I would love to be able to eat bagels, luna bars, pretzels, crackers.... again! Plus it's hidden in everything like condiments, soups, etc. Plus, I would love to eat Heathers bread recipes!
Oh, do you find that certain veggies help more with the C? Like spinach is better than carrots or squash which are both insoluble? Boy, I told you I was done with the questions. Sorry I keep asking more, but inquiring minds want to know. Plus, I'm giving you practice for your future profession (makes me feel less guilty, maybe!). Sorry!
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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hey don't feel bad about asking me questions: its my pleasure...I went GF because I felt more C when I ate wheat...turns out it was too much white wheat etc was making me C and I wasn't eating enough fibrous things too..classic C! Sounds to me as if you should stay off the gluten foods because of your results, and if it isn't too much hassle I suggest you have more tests repeated because GF is NOT fun as you said but you must stick to it if you need to...or you won't absorb nutrients properly.
I feel that spinach and asparagus help whip out the poos more then carrots etc, but I feel that the carrots etc help form the poos into proper logs as opposed to sloppy mess...so I eat them together...its just trial and error really.
If I were you right now (and if you have time and enjoy baking) I would start a new hobbie of adapting recipes to wheat free etc...some may turn out as disasters but some will be wonderful!! It would be a lovely thing for yourself. Good luck!
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Thanks, and your response was so graphic. Lovely way to express poop. It helped to get the full explanation!
Those are the only tests they have for gluten intolerance. I had them done twice, and they came back the same way both times. Like I said, the celiac gene is negative, but I do have the antibodies. So, who knows. I probably should stick to the GF diet, but it sucks eating so restrictivly (both IBS and GF) and still feeling horrible!
I have gained back 20 pound going GF so I must be absorbing better. Yes, I needed the 20 pounds and could still use some more. But now that I've gained the weight I want to go back to gluten! I love gluten foods!
Thanks again for your advice Dalia
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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How are you feeling since going off the SFS? Hopefully better? Did you decide if you are going to attempt another one yet? Hard to try another after a bad experience I would presume.
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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!
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