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When will the pain end??
      #110216 - 10/04/04 08:29 AM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

I'm at my witts end! I have cried so much in the last month. I have had IBS since I was 15, I'm 34 now. I'm mostly C but take miralax to keep things moving. Most everyday I have some problems, like bloating or gas but I have learned to live with it over the years. My IBS seems to be very stress related. This summer has been difficult for me, I have had 2 miscarriages since May. Through all of that, my tummy hasn't been too terrible, nothing I'm not used to.

However, just over a month ago, I got a really bad attack. A bad attack for me is SEVERE pain, bloating, gas and alternating C and D. The pressure gets so bad, I can't wear regular pants or my bra and the nausea is just awful. I have been to the dr's twice in the last few weeks. I already take Zoloft (anti-depressant) and miralax. When I get this bad, I'll switch between Miralax and Zelnorm. The zelnorm sometimes helps but I build up a tolerance very quickly. In addition to that, I'm also taking Xanax, Vicodin and Donnatol. I use Heathers Acacia every day and have been eating peppermint capsules like candy! I sleep with the heating pad every night and now have burns on my tummy. I'm so depressed from the constant pain, all I do is cry. Its never been this bad for this long. Its going on 5 weeks now and I've only had a couple of half days where I felt even somewhat human. I just don't know how much more of this I can take! It's causing issues at home with my husband and my friends don't even call anymore because I never want to do anything because my tummy hurts so bad!

I have had every scope, scan, probe and x-ray done known to man. I have been tested for celiac and many other things. The dr's keep saying "its JUST ibs." I have been on Heathers diet for about a year and half now. I drink a ton of water. I haven't been able to exercise as much as I used too lately because I'm in so much pain. What else can I do?????

I'm sorry this is so long and whinny, I thank you if you have made it this far. I guess I'm just looking for a sympathetic ear, someone who understands. I'm just in a vicious circle right now. The more it hurts, the more I get depressed and the more I get depressed the more it hurts. I'm wondering if maybe I should ask my dr to increase my zoloft from 50mg to 100? Since I am still trying to get pregnant, I wanted to take the least amount possible but I'm wondering if I need more. I know a several of you out there are on zoloft, did any of you see any improvement when you increased your doses??

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Taking it one day at a time.....

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Re: When will the pain end?? new
      #110222 - 10/04/04 09:11 AM
heather7476

Reged: 08/09/04
Posts: 2996
Loc: South East Michigan

Michele
<<<<<<<<<<BIG HUGS>>>>>>>>>>>>
I've been wondering how you were doing. I am so sorry that you are still in pain. I know what it is like and cycle of pain and depresion can be so hard at times. I didn't noticee any differance when I uped my does to 100mg but everybody is differant. 100mg is just as safe as 50mg during pregnancy my doctor said. It is worth a try. I wish I could help you more. If you need anything give me call. I'll email you my number in alittle while. We are only about 45min apart so if I can help let me know!!!! Or if you just want to talk CALL!!!! I have a feeling that alot of this is from the hormones your taking. I am not a doctor but that is the only thing you have changed. I realy don't talk to my friends very much anymore either, I think they are sick of me always being sick. It will get better hon.
Hang in there!!!!

--------------------
Heather7476


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Re: When will the pain end?? new
      #110231 - 10/04/04 09:23 AM
beth71

Reged: 09/03/04
Posts: 65
Loc: Fort Worth, Texas

Michele-
I'm so sorry to hear how much pain you are in. I just wanted to let you know that we all understand and vent anytime you need too! Have you ever tried the Thermacare menstral heating pads? They are disposable and work for 8 hours straight. I use them when the pain and bloating get too bad and I have things to do. They are a lifesaver, and they don't burn you. Good luck and know that I'm thinking of you.
~Beth

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Re: When will the pain end?? new
      #110242 - 10/04/04 10:18 AM
Sheri01

Reged: 04/19/04
Posts: 1731
Loc: New Jersey

I don't have any good advice, sorry...
just wanted to say that it is really awful that you have to go through all of this and that I wish you a speedy recovery.
I also hope that things turn out for you and that you wind up with a healthy beautiful boy or girl one day. you deserve it.
just remember, things do get better, as hard as it is to see it sometimes.
I apologize for not being very good at being encouraging!

--------------------
-Sheri

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Re: When will the pain end?? new
      #110253 - 10/04/04 10:54 AM
Gr8ful

Reged: 03/15/04
Posts: 290
Loc: Orange County CA

Michele,

I am truly sorry you have been feeling so poorly. It sounds like you are doing things right though. Maybe just take small walks to get out in the fresh air and get a bit of exercise but no over-doing it.

Since the diet has worked in the past I would stick with it. My guess is that it's the stress your body has been under with the miscarriages that has triggered this. I personally haven't tried the hypno therapy tapes but many attest to their wonders - it might be worth a try.

Please know I will keep you in my prayers. I am so sorry about your second loss - I wasn't aware of that. May God embrace you and keep you and give you peace!

Blessings,

Leigh



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*hugs* for Michele new
      #110254 - 10/04/04 10:54 AM
Snow for Sarala

Reged: 03/12/03
Posts: 5430
Loc: West Coast, USA

MICHELE! *hugs*

When I was kid I would throw up my IBS pain got so bad...so you're not alone (I wish that would somehow make it better...but just know you're not alone this).

Gosh I wish I had some advice! It sounds like you're doing all the right things!

do you know what prompted the attack? Are you exercisingf...getting enough water...enough sleep?

I hope you feel better REALLY soon! and if you ever want to chat, my e-mail is Ruchily@yahoo.com. I've been CRAWLING on the floor in pain from my tummy before...so I will understand where you're coming from in the pain department. i'm also IBS C.

If there's anything Ic an do let me know...int he meantime, pamper yourself with a bath or whatever!

Oh, have you tried hypno Just a though4!

Feel better soon!

Love,
Ruchie

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Formerly known as Ruchie

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Re: The pain - A suggestion. new
      #110266 - 10/04/04 11:12 AM
Lefty1

Reged: 08/09/04
Posts: 157


Have you asked your Dr. how to break the pain cycle? It does seem like too long to deal with that kind of pain. It IS so hard for you, it is real, and it hurts. It sounds like you need a break. Once you get that pain medicine then you can start over again with your diet. Strip it down to bread and water if you have to and start over.

My brother-in-law is a Dr. and he talks about the cycle of pain. That if you can break that cycle it makes all the difference.

I think I remember reading in One of Heather's books that she takes something a very few times a year when pain gets out of control. I believe I also remember that she said it could be hard get a Dr. to agree to get you the pain meds.

Does anyone else remember reading this?

Also, on page 29 in her cookbook in the first full paragraph she talks about what to do when you are - where you now are, in your IBS cycle. Do you have that? If not I can try to retype it for you.

I am sorry that your hurting.

Lefty

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Re: When will the pain end?? new
      #110267 - 10/04/04 11:13 AM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

Thanks girls. I have done the hypno tapes. I still listen to them at night to try and help me sleep. I just don't know what else to do. I feel hopeless. I know, this too shall pass, but I just feel like its been one thing after another lately. I'm sorry I sound so negative. I usually try real hard to stay positive. I'm sure things will get better soon.

--------------------
Taking it one day at a time.....

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Re: Thanks Lefty1 new
      #110272 - 10/04/04 11:17 AM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

I do know about the pain cycle. Usually, if I can break that, I do start to feel better. In the past a few vicodin have done that but not this time. I have been eating vicodin, donnatol and Xanax like crazy and its just not helping. I don't even know what else to try. To top it off, I'm scheduled for jury duty tomorrow! ICK! Once I know what my schedule will be like, I'll call my dr back and see if there is anything else she can do. I have already seen her twice in the last couple of weeks.

--------------------
Taking it one day at a time.....

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Re: When will the pain end?? new
      #110276 - 10/04/04 11:23 AM
Digby

Reged: 07/31/04
Posts: 453


Sorry to hear about your pain. I have IBS-D, and the grass always seems greener on the other side, eh?

My gastro-guy prescribs Elavyl, an antidepressant, for IBS. It cuts down on pain signals. Perhaps you could talk to your doc about switching form Zoloft.

I took Zoloft for depression and it was great until I started having horrible night sweats. I didn't have IBS at that time, so I don't know if it works for that.

My boyfriend has constipation and the only thing that gets him going is lots of water and oat bran with his cereal. I'm not sure if oat bran will be a trigger for you; maybe ask Heather on that.

Good luck!

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